News

March 30 2020, From National Hemophilia Foundation’s (NHF's) Medical and Scientific Advisory Council (MASAC) Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration Patients on home therapy receive regular shipments of...

VHF Community Members, As our mission states we are dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy, and community. During the current health crisis this is now more important than ever. While we have...

CORONAVIRUS (COVID-19) VIRGINIA HEMOPHILIA FOUNDATION (VHF) UPDATE In light of current events, we have made a proactive decision to cancel and/or postpone all in-person programs and events through May 31, 2020 (events scheduled for after June 1, 2020 have not been...

Growing up in the 1980s, childhood would be complicated for Heather Brinkley. Both of her brothers, William and Aaron, have Hemophilia Factor IX severe. “When the boys would have a bleed it meant a trip to the emergency room for treatment. They were treated on-demand...

Becky Bowers-Lanier | VHF & HACA Advocacy Consultant At the time of this writing, the 2020 General Assembly is about to adjourn its “long” (60 day) session until the Assembly returns for the “reconvened” one-day session April 22nd. It’s been a session of firsts: -...

Over 450 advocates from around the country gathered in Washington D.C. for NHF’s Annual Washington Days. This year our travel grant recipients and their families advocated for Congress to continue to support the funding for the federal hemophilia programs through the...