Signature Events and Programs
Rejuvenating weekend retreats with a focus on community building, education, and time to gather and share with other people who encounter similar challenges. This retreat is open to adults age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses, immediate family members). VHF offers two retreat weekends in a calendar year, one for women and one for men.
Advocacy Training and Richmond Days
This is your chance to be heard – join constituents from the Virginia Hemophilia Foundation (VHF) and Hemophilia Association of the Capital Area (HACA) and learn the power of your story! Advocacy Training is an opportunity for people affected by inherited bleeding disorders in the Commonwealth of Virginia to receive updates on current issues on both the Federal and State level as well as time to review and rehearse talking points. During Richmond Days you have the opportunity to attend scheduled meetings with your individual legislators along with a group of other bleeding disorders constituents to advocate for the issues that are important you and your community!
Annual Education Meeting
VHF’s Annual Education Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics including advocacy, general health and wellness, and recent treatment developments. It is a great opportunity for networking and support for individuals and families.
Camp Youngblood at Camp Holiday Trails
A week-long overnight camp at Camp Holiday Trails (CHT) in Charlottesville, VA for children ages 7 – 17 with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area. Kids enjoy a week of learning through traditional camp experiences with others that are faced with similar challenges and shared stories. Acceptance to Camp Youngblood is based on a review of the Camper’s application by Camp Holiday Trails Program and Medical staff. Decisions are also made considering VHF’s Program Registration Guidelines, you can find them here.
VHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for family fun, networking, support, and increasing knowledge.
These dinners are a series of educational presentations hosted at restaurants around the commonwealth. Facilitators are clinicians, national advocates, and industry experts. Educational dinners enable those affected by inherited bleeding disorders to connect with people from their local community, as well as learn about a range of relevant topics.
Family Camp Weekend at Camp Holiday Trails
First Step Program for New Families
First Step is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. This program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years.
The VHF Medical Symposium will provide consumers with the knowledge needed to discuss new and current treatment options, have conversations around product safety and how to make tough decisions about medical care. This program will also recognize March as Bleeding Disorders Awareness Month and will help the Virginia bleeding disorders community understand what these potential advancements may mean.
A weekend of connection, skill building, introduction to opportunities for education and growth all while building a strong sense of community! This retreat is for teens ages 13 – 17 with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area.
A wonderful way to celebrate the holiday season. There is always great food, education, and networking.
Check out the Calendar
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Become a Sponsor
Contact Kelly Waters at firstname.lastname@example.org or call 804-740-8643 for more information.