Signature Events and Programs
Rejuvenating weekend retreats with a focus on community building. Participants will enjoy education and time to gather and share with other people who encounter similar challenges. This retreat is open to adults age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses, immediate family members). VHF offers two retreat weekends in a calendar year, one for women and one for men.
Women’s Retreat Weekend – February 8, 2020 | Go here to see photos from the 2019 retreat.
VHF/HACA Advocacy Training and Richmond Days
This is your chance to be heard – join constituents from the Virginia Hemophilia Foundation (VHF) and Hemophilia Association of the Capital Area (HACA) and learn the power of your story! Advocacy Training is an opportunity for people affected by inherited bleeding disorders in the Commonwealth of Virginia to receive updates on current issues on both the Federal and State level as well as time to review and rehearse talking points. During Richmond Days you have the opportunity to attend scheduled meetings with your individual legislators along with a group of other bleeding disorders constituents to advocate for the issues that are important you and your community! Go here to see photos from our 2019 Advocacy Training and Richmond Days.
Advocacy Training and Richmond Days – January 19 – 20, 2020 | RSVP coming soon!
Annual Education Meeting
VHF’s Annual Education Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics including advocacy, general health and wellness, and recent treatment developments.from the basics of diagnosis to the most relevant developments in treatment. It is a great opportunity for networking and support for individuals and families. Go here to see photos from our 2019 Annual Meeting.
Annual Education Meeting | June 19 – 20, 2020
VHF/HACA Camp Youngblood at Camp Holiday Trails
A week-long overnight camp at Camp Holiday Trails (CHT) in Charlottesville, VA for children ages 7 – 17 with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area. Kids enjoy a week of learning through traditional camp experiences with others that are faced with similar challenges and shared stories. Acceptance to Camp Youngblood is based on a review of the Camper’s application by Camp Holiday Trails Program and Medical staff. Decisions are also made considering VHF’s Program Registration Guidelines, you can find them here.
Camp Youngblood at Camp Holiday Trails | 2020 Date TBD
VHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for family fun, networking, support, and increasing knowledge. Go here to see our upcoming events.
These dinners are a series of educational presentations hosted at restaurants around the commonwealth. Facilitators are clinicians, national advocates, and industry experts. Educational dinners enable those affected by inherited bleeding disorders to connect with people from their local community, as well as learn about a range of relevant topics. Go here to see our upcoming Educational Dinners.
VHF/HACA Family Bleeding Disorders Camp at Camp Holiday Trails
Join Virginia Hemophilia Foundation (VHF) & Hemophilia Association of the Capital Area (HACA) at Camp Holiday Trails (CHT) for a weekend camp for families impacted by an inherited bleeding disorder. This program is designed for families with at least one child living at home who is between the ages of 5 – 17, whose children are camp ready and/or are looking to attend camp in the next two years. Eligible families are those impacted by an inherited bleeding disorder who live in the territorial jurisdiction of VHF & HACA. Go here to see photos from the 2018 Family Weekend at Camp Holiday Trails.
Family Bleeding Disorders Camp at Camp Holiday Trails | 2020 Date TBD
First Step Program for New Families
First Step is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. This program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years. Go here to see photos from our 2019 First Step Program.
First Step Program | 2020 Date TBD
VHF/HACA Teen Retreat
A weekend of connection, skill building, introduction to opportunities for education and growth all while building a strong sense of community! This retreat is for teens ages 13 – 17 with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area. Go here to see photos from our 2019 Teen Retreat!
Teen Retreat | 2020 Date TBD