Signature Events and Programs
Adult Retreats
Rejuvenating weekend retreats with a focus on community building, education, and time to gather and share with other people who encounter similar challenges. These retreats are open to adults age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses, immediate family members).
Advocacy Training
This is your chance to be heard – join constituents from the Virginia Hemophilia Foundation (VHF) and Hemophilia Association of the Capital Area (HACA) and learn the power of your story! Advocacy Training is an opportunity for people affected by inherited bleeding disorders in the Commonwealth of Virginia to receive updates on current issues on both the Federal and State level as well as time to review and rehearse talking points.
Annual Education Meeting
VHF’s Annual Education Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics including advocacy, general health and wellness, and recent treatment developments. It is a great opportunity for networking and support for individuals and families.
Camp Youngblood at Camp Holiday Trails
A week-long overnight camp at Camp Holiday Trails (CHT) in Charlottesville, VA for children ages 7 – 17 with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area. Kids enjoy a week of learning through traditional camp experiences with others that are faced with similar challenges and shared stories. Acceptance to Camp Youngblood is based on a review of the Camper’s application by Camp Holiday Trails Program and Medical staff. Decisions are also made considering VHF’s Program Registration Guidelines, you can find them here.
Community Events
VHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for family fun, networking, support, and increasing knowledge.
Educational Dinners
These dinners are a series of educational presentations hosted at restaurants around the Commonwealth. Facilitators are clinicians, national advocates, and industry experts. Educational dinners enable those affected by inherited bleeding disorders to connect with people from their local community, as well as learn about a range of relevant topics.
Medical Symposium
The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options, access to care issues and other medical/health related topics.
New Family Education and Support
A program designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. This program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years.
Winter Gatherings
A wonderful way to celebrate the holiday season. There is always great food, education, and networking.
Check out the Calendar
More information
Download these useful documents:
Become a Sponsor
Contact Kelly Waters at info@vahemophilia.org or call 804-740-8643 for more information.