Shareable Resources for Schools and Healthcare Providers

Inherited Bleeding Disorders in the Schools

Handouts for School Healthcare Providers, Teachers, and Families that you can download and print:

• What is Hemophilia
• What is Von Willebrand Disease
• What are Other Rare Bleeding Disorders
• The Care Team: Working Together to Support Students
• Typical Symptoms and First Aid for Hemophilia
• Possible 504 Plan Accommodations
• Plans to Support Students in School
• A Guide on When to Call your Child’s Hematologist or Pediatrician

One-page List of Resources and Links

Basic Information on Hemophilia

• Basic Information on Hemophilia (from Children’s Hospital of the King’s Daughters)
• Hemophilia Special Needs Fact Sheet for Schools (from Nemours Children’s Hospital)
• Identifying Types of Bleeds

Hemophilia Resources Specific to School Settings

• Hemophilia Federation of America’s (HFA’s) Back to School Toolkit (includes customizable PowerPoint presentations, sample Individual Healthcare Plans, sample 504 plans, and more)
• National Hemophilia Foundation’s Steps for Living Guidance for Schools
• IDEA (IEP) vs. 504 Flowchart (Hemophilia Federation of America)
• HFA’s List of Possible Accommodations for Students with a Bleeding Disorder
• HANDI Highlights: Resources for Students Headed Off to College!

Video and Visual Educational Resources

• Visual Description of a Joint Bleed (from the World Federation of Hemophilia)
• Hemophilia in Pictures (from the World Federation of Hemophilia)

Relevant Information from the Virginia Department of Education

• Individualized Health Care Plans (provides guidance on developing IHPs and provides the standard Virginia form for IHPs)
• Individualized Education Program (webpage that provides information on IEPs in Virginia schools)
• Section 504: Keys to Implementation in Virginia’s Schools (presentation on development of 504 Plans with useful links)

Dental Care Resources

• Letter to Dental Health Professional (form to share your diagnosis with your dentist)
• NHF Steps for Living Dental Care (Birth – 8 years)
• NHF Steps for Living Dental Care and Orthodontia (9 – 15 years)

Training Opportunities for School Healthcare Providers (with CEU credit options)

• Partners in Bleeding Disorders Education (has various units on School Nurse Education, Interactive Case Study, Emergency Care of Bleeding Disorders)
• Centers for Disease Control Training Opportunities (Introduction to Hemophilia Care and Nursing Perspectives for Optimizing Outcomes in Hemophilia Treatment)

Information Forms for Emergency Healthcare Providers

• Emergency Guidelines Form Hemophilia A
• Emergency Guidelines Form Hemophilia A with Inhibitor (taking Hemlibra)
• Emergency Guidelines Form Hemophilia A without Inhibitor (taking Hemlibra)
• Emergency Guidelines Form Hemophilia B
• Emergency Guidelines Form Von Willebrand Disease (Factor)
• Emergency Guidelines Form Von Willebrand Disease (DDAVP)

Hemophilia Foundation of America’s Emergency Room, Hospital, & Clinic Visits Toolkit

Medscape Launches Activity for Emergency Department Providers

An important new educational activity has launched for healthcare providers who practice in an emergency department setting. “Evaluation and Management of Hemophilia in the Emergency Department” was developed through a partnership between Medscape Education, the American College of Emergency Physicians, and the National Hemophilia Foundation.

The activity is intended for emergency medicine physicians, hematologists, pediatricians, nurses, and other healthcare professionals who manage patients with hemophilia. The goal is to increase understanding of the optimal management of patients with hemophilia who present to the emergency department (ED).

If you are already registered with Medscape follow this link to “Evaluation and Management of Hemophilia in the Emergency Department.”

If you are not already registered, go to Medscape.org where registration is straightforward and free of charge.