Shareable Resources for Schools and Healthcare Providers
Inherited Bleeding Disorders in the Schools
Handouts for School Healthcare Providers, Teachers, and Families that you can download and print:
- What is Hemophilia
- What is Von Willebrand Disease
- What are Other Rare Bleeding Disorders
- The Care Team: Working Together to Support Students
- Typical Symptoms and First Aid for Hemophilia
- Possible 504 Plan Accommodations
- Plans to Support Students in School
- A Guide on When to Call your Child’s Hematologist or Pediatrician
Basic Information on Hemophilia
- Basic Information on Hemophilia (from Children’s Hospital of the King’s Daughters)
- Hemophilia Special Needs Fact Sheet for Schools (from Nemours Children’s Hospital)
- Identifying Types of Bleeds
Hemophilia Resources Specific to School Settings
- Hemophilia Federation of America’s (HFA’s) Back to School Toolkit (includes customizable PowerPoint presentations, sample Individual Healthcare Plans, sample 504 plans, and more)
- National Bleeding Disorders Foundation’s (NBDF’s) Steps for Living Guidance for Schools
- IDEA (IEP) vs. 504 Flowchart (Hemophilia Federation of America)
- HFA’s List of Possible Accommodations for Students with a Bleeding Disorder
- HANDI Highlights: Resources for Students Headed Off to College!
Video and Visual Educational Resources
- Visual Description of a Joint Bleed (from the World Federation of Hemophilia)
- Hemophilia in Pictures (from the World Federation of Hemophilia)
Relevant Information from the Virginia Department of Education and Virginia Department of Health
- Individualized Health Care Plans (pdf that provides guidance on developing IHPs in Virgina) from the National Association of School Nurses – an IHP is a plan of care written by the registered nurse for students with or at risk for physical or mental health needs (ANA & NASN, 2017). It is the responsibility of the school nurse to annually evaluate the IHP, to reflect changes in the student’s healthcare needs and address nursing interventions and/or student healthcare outcomes.
- Individualized Education Program (webpage that provides information on IEPs in Virginia schools)
- Parent and Educator Resource Guide to Section 504 in Public Elementary and Secondary Schools
Dental Care Resources
- Letter to Dental Health Professional (form to share your diagnosis with your dentist)
- NBDF Steps for Living Dental Care (Birth – 8 years)
- NBDF Steps for Living Dental Care and Orthodontia (9 – 15 years)
Training Opportunities for School Healthcare Providers (with CEU credit options)
- Partners in Bleeding Disorders Education (has various units on School Nurse Education, Interactive Case Study, Emergency Care of Bleeding Disorders)
- Nursing Perspectives for Optimizing Outcomes in Hemophilia Treatment
Information Forms for Emergency Healthcare Providers
- Emergency Guidelines Form Hemophilia A
- Emergency Guidelines Form Hemophilia A with Inhibitor (taking Hemlibra)
- Emergency Guidelines Form Hemophilia A without Inhibitor (taking Hemlibra)
- Emergency Guidelines Form Hemophilia B
- Emergency Guidelines Form Von Willebrand Disease (Factor)
- Emergency Guidelines Form Von Willebrand Disease (DDAVP)
National Bleeding Disorders Foundation Health Equity Toolkit with information on emergency department visits and how to make a plan.
Medscape Launches Activity for Emergency Department Providers
An important new educational activity has launched for healthcare providers who practice in an emergency department setting. “Evaluation and Management of Hemophilia in the Emergency Department” was developed through a partnership between Medscape Education, the American College of Emergency Physicians, and the National Hemophilia Foundation.
The activity is intended for emergency medicine physicians, hematologists, pediatricians, nurses, and other healthcare professionals who manage patients with hemophilia. The goal is to increase understanding of the optimal management of patients with hemophilia who present to the emergency department (ED).
If you are already registered with Medscape follow this link to “Evaluation and Management of Hemophilia in the Emergency Department.”
If you are not already registered, go to Medscape.org where registration is straightforward and free of charge.