As members of the bleeding disorders’ community, we’ve all likely had experiences where our bodies, our providers, and/or our health care system has failed us or a loved one. And this has made us angry. You yell! You scream! But what good has that done? Hear from a panel of local VHF members about their lives as tireless (and often angry) bleeding disorders’ advocates. Learn the importance of record keeping and controlled advocacy; gain strategies for working with your providers and insurance to get what you need; and acquire tools for establishing a reasoned voice within the community, a voice that people listen to. Whether you are new to advocacy or have been a life-long advocate yourself, let VHF & their community members inspire you to turn your anger into something powerful and useful – advocacy!
Join the HACA/VHF advocacy committee as we present our first in a series of virtual chats. These chats will focus on advocacy topics relevant to the bleeding disorders community. During the first virtual chat, we will discuss the disposition of legislation we followed during the 2020 General Assembly session including bills we opposed and supported and we will also attempt to predict what might happen when the General Assembly returns on April 22nd. We will also spend some time talking about how COVID-19 is affecting you and yours as we maintain social distancing measures. All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in, either by video conference or phone call. Please join us!
The Virginia bleeding disorders community needs you. This is your chance to be heard – join us and share your story! Advocacy Training and Richmond Days are an opportunity for people affected by inherited bleeding disorders in the Commonwealth of Virginia to advocate for issues that matter to them. During Richmond Days, the Virginia Hemophilia Foundation (VHF) schedules meetings with individual legislators that allow constituents to advocate and share their story.