A weekend of fun and learning for teens that are faced with similar challenges. Join us for a chance to connect and create a strong sense of community! For teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder, be the sibling of someone with a bleeding disorder, or have a parent/caregiver with a bleeding disorder. If a hotel room is requested then parent/caregiver must be in attendance with registered teen(s).
JOIN US FOR OUR FIRST EVER YOUNG ADULT RETREAT! A weekend of connection and learning for young adults that are faced with similar challenges. There will be plenty of opportunities for growth and skill development through interactive sessions on navigating the insurance landscape, do’s and don’ts of career success, disclosure and more.. For young adults age 18–24 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder, be the sibling of someone with a bleeding disorder, or have a parent/caregiver with a bleeding disorder. If a hotel room is requested then young adult must be 21 or older or have a parent/caregiver in attendance.
VHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families.
Highlights include: Sessions on advocacy, gene therapy, and bleeding disorders outside of hemophilia; Lyman Fisher Scholarship recognition; VHF chapter updates; on-site children and teen programming; and on-site childcare for 5 and under.
The Virginia bleeding disorders community needs you. This is your chance to be heard – join us and share your story! Advocacy Training and Richmond Days are an opportunity for people affected by inherited bleeding disorders in the Commonwealth of Virginia to advocate for issues that matter to them. During Richmond Days, the Virginia Hemophilia Foundation (VHF) schedules meetings with individual legislators that allow constituents to advocate and share their story.