A weekend of fun and learning for teens that are faced with similar challenges. Join us for a chance to connect and create a strong sense of community! For teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder, be the sibling of someone with a bleeding disorder, or have a parent/caregiver with a bleeding disorder. If a hotel room is requested then parent/caregiver must be in attendance with registered teen(s).
VHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families.
Highlights include: Sessions on advocacy, gene therapy, and bleeding disorders outside of hemophilia; Lyman Fisher Scholarship recognition; VHF chapter updates; on-site children and teen programming; and on-site childcare for 5 and under.
The Virginia bleeding disorders community needs you. This is your chance to be heard – join us and share your story! Advocacy Training and Richmond Days are an opportunity for people affected by inherited bleeding disorders in the Commonwealth of Virginia to advocate for issues that matter to them. During Richmond Days, the Virginia Hemophilia Foundation (VHF) schedules meetings with individual legislators that allow constituents to advocate and share their story.
Educational dinners are a series of educational presentations hosted at restaurants around the state. Facilitators are clinicians, national advocates, and industry experts. Educational dinners enable those affected by inherited bleeding disorders to connect with people from their local community, as well as learn about a range of relevant topics.