News
2021 Unite Walk – THANK YOU!
WOW! VHF would like to give a huge shout-out to all of our amazing teams, sponsors, donors and participants for this year's Unite for Bleeding Disorders Virtual Walk! Together, we raised $33,243 to help those living with inherited bleeding disorders in this...
VHF Fall 2021 Advocacy Update
Becky Bowers-Lanier | VHF Advocacy Consultant This fall, we have two virtual advocacy events planned; one that already occurred on September 27th, and the other is our annual VHF/HACA Virtual Advocacy Stakeholder and Education Meeting set for November 13th at 4 pm....
Vector Biology and Hemophilia Gene Therapy the Focus of Review
A new review article, “The Intersection of Vector Biology, Gene Therapy, and Hemophilia,” was published recently in the journal Research Practice in Thrombosis & Haemostasis (RPTH). It provides a comprehensive overview of the scientific underpinnings of several...
Finally, And Thank You! (Stimate Update)
by Joe Pugliese | President and CEO, Hemophilia Alliance September 2021 Hemophilia Alliance Newsletter A little more than a year after the worldwide recall of Stimate, there is cGMP manufactured DDAVP NS available in the USA. The product is being produced and...
Health Insurance Marketplace Updates
When can I enroll in 2022 Marketplace coverage? Open enrollment for the Affordable Care Act (ACA) health insurance marketplace is November 1, 2021 – January 15, 2022. Enroll by December 15, 2021 for coverage that starts January 1, 2022. Looking for coverage for...
Community Member Spotlight
COMMUNITY SPOTLIGHT VHF Community member Brandon Nowlan signed a national letter of intent with ODU Old Dominion University Athletics men's basketball this past week, joining the squad for the 2021-2022 season. The ODU Monarchs learned that Brandon has #hemophilia...