News
Gettin’ In The Game Junior National Championships
VHF sent three participants, Matthew Lee (swimming), Tucker Vasil (golf), and Jose Chanta (basketball), to this year's 21st annual Gettin’ in the Game Junior National Championship (JNC), the first and currently the only, national sports competition for children with...
New Study Looks at Hemophilia Survival Rate Disparities
Results of a new study published in the journal Haemophilia are illustrative of persistent health disparities existing within the U.S. hemophilia population. The data that informed the study was drawn from National Vital Statistics System (NVSS), which generates...
Virginia’s Insurance Marketplace Opens November 1!
Lauren Dunn, MSW, VCU Hemophilia Social Woker, VBDP Health Insurance Consultant If you are enrolled in an ACA Marketplace plan, or are shopping for health insurance coverage for 2024, there’s an important change coming in November. The marketplace open enrollment for...
Community Voices in Research (CVR): Enroll Now!
Community Voices in Research (CVR) is a community-powered registry that collects, via electronic surveys, the lived experience of people affected by inherited bleeding disorders (BD) and their immediate family members. It is designed to transform experiences into...
October 2023 Monthly Update
Go here to read our October 2023 VHF Monthly Update!
2023 Medical Symposium at Great Wolf Lodge Wrap-Up
We had a wonderful turnout with over 180 people joining us for this year's Medical Symposium! Attendees consisted of community members of all ages, HTC staff, and board members. The adults gathered to learn more about shared decision making and the shift toward person...