News

Growing up in the 1980s, childhood would be complicated for Heather Brinkley. Both of her brothers, William and Aaron, have Hemophilia Factor IX severe. “When the boys would have a bleed it meant a trip to the emergency room for treatment. They were treated on-demand...

Becky Bowers-Lanier | VHF & HACA Advocacy Consultant At the time of this writing, the 2020 General Assembly is about to adjourn its “long” (60 day) session until the Assembly returns for the “reconvened” one-day session April 22nd. It’s been a session of firsts: -...

Over 450 advocates from around the country gathered in Washington D.C. for NHF’s Annual Washington Days. This year our travel grant recipients and their families advocated for Congress to continue to support the funding for the federal hemophilia programs through the...

Don Smith’s parents were caught completely off guard when he was diagnosed with hemophilia A, severe factor VIII deficiency. Growing up without a family history of bleeding disorders, Don and his family “found themselves in the deep end of a pool of mystery!” His...

VHF is proud to spotlight Marquita Reinhardt as our first nominee for VHF Volunteer of the Year in 2020. Marquita has been a constituent of VHF since her son Matthew, now 12, was diagnosed with severe hemophilia A (factor 8 deficiency) with an inhibitor. Marquita has...

This year VHF celebrated #GivingTuesday by being GRATEFUL. We called on our community to celebrate those who have touched your lives and have dedicated themselves to making a difference for those impacted by bleeding disorders. YOU DID JUST THAT. You shared your...