Over 450 advocates from around the country gathered in Washington D.C. for NHF’s Annual Washington Days. This year our travel grant recipients and their families advocated for Congress to continue to support the funding for the federal hemophilia programs through the National Institute of Health (NIH), the Centers for Disease Control (CDC), and the Health Resources and Services Administration (HRSA). In addition, we focused on the Hemophilia Skilled Nursing Facility (SNF) Access Act (S. 3233; HR 5952) which adds bleeding disorders treatment to a list of high cost, uncommon services that SNFs may separately bill for under Medicare Part B. This change in Medicare law will allow people with bleeding disorders to receive care in SNFs when needed. Click here to learn more about NHF’s Federal Priorities. And keep a lookout for information on VHF’s advocacy training on November 14th.
2020 Washington Days Travel Grant Recipients:
“Washington Days was such a tremendously rewarding experience! I was able to connect with fellow hemophiliacs and their families from all over the country. We were able to share stories about our experiences living with hemophilia and work together to be voices for our community.” – Jackson White
“I was happy to be in Washington D.C. with the National Hemophilia Foundation and our friends from around the country. We met with our legislators on Thursday and together, all of our stories will help to create change and improve lives in our community.” – Krista Davidson
“Washington Days was a great experience and reminded me a lot of Richmond Days, although with more people and more walking. I felt well prepared having listened to the webinar prior to the meeting and it was encouraging to see the legislative aides so receptive. Although the schedule was packed, there was time to visit the House and Senate galleries to learn more about the process.” – Lamont Banks