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HACA/VHF Advocacy Committee Virtual Chat

Join the HACA/VHF advocacy committee as we present our first in a series of virtual chats. These chats will focus on advocacy topics relevant to the bleeding disorders community. During the first virtual chat, we will discuss the disposition of legislation we followed during the 2020 General Assembly session including bills we opposed and supported and we will also attempt to predict what might happen when the General Assembly returns on April 22nd. We will also spend some time talking about how COVID-19 is affecting you and yours as we maintain social distancing measures. All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in, either by video conference or phone call. Please join us!

HACA/VHF Advocacy Committee Virtual Chat

Online

Join the HACA/VHF advocacy committee for a virtual chat. This chat brings Miriam Goldstein, HFA Director of Policy, and Becky Bowers-Lanier, advocacy consultant for HACA and VHF, together for a webinar devoted to advocacy in our newly configured COVID world. Join us as we share what we’ve learned since mid-March and how we can maintain our voice when we cannot physically be present. We’ll talk about strategies and answer your questions. All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in, either by video conference or phone call. Please join us!

First Step Virtual Program For New Families

Online

Join VHF, HTC staff and mentor families for a virtual program for new families! This program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. This program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years.

Virtual Annual Education Meeting – Session #1: Maintaining Joint Health Through Exercise – Get Up and Move

Online

Get Up and Move is a program focused on maintaining joint health through exercise. This program will be presented by Dr. Jeffrey Kallberg, an experienced physical therapist and hem A patient. Through this program, we hope to inform you on three areas: how joints work, how your body moves, and simple exercises that you can do to help strengthen your joints and maintain joint health. We look forward to seeing you there!

Virtual Annual Education Meeting – Session #2: Advocacy Not Anger: Being Your Own Voice

Online

As members of the bleeding disorders’ community, we’ve all likely had experiences where our bodies, our providers, and/or our health care system has failed us or a loved one. And this has made us angry. You yell! You scream! But what good has that done? Hear from a panel of local VHF members about their lives as tireless (and often angry) bleeding disorders’ advocates. Learn the importance of record keeping and controlled advocacy; gain strategies for working with your providers and insurance to get what you need; and acquire tools for establishing a reasoned voice within the community, a voice that people listen to. Whether you are new to advocacy or have been a life-long advocate yourself, let VHF & their community members inspire you to turn your anger into something powerful and useful - advocacy!