Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy and community.
News & Events
Researchers at the Boston Children’s Program in Cellular and Molecular Medicine and the Harvard Medical School recently made important discoveries relevant to the functioning of von Willebrand factor (VWF). The study, “Flow-induced Elongation of von Willebrand Factor...Read more »
Alnylam Pharmaceuticals, Inc. has reported on the death of a hemophilia A patient who had been participating in a Phase 2 open label extension study for the company’s investigational therapy fitusiran which is being developed for patients with hemophilia A and B, both...Read more »
(Make a plan. Include your specific health and safety needs when creating your emergency plan. Ready.gov/myplan. Brought to you by the Ad Council and Ready.) September is National Preparedness Month. During the last few months, we have witnessed Americans experience...Read more »
What a great week at Camp Youngblood hosted by Camp Holiday Trails (CHT) in Charlottesville. We all experienced camp magic from the youngest campers to the seasoned counselors and staff. Counselors and staff worked tirelessly to make the session extra special!...Read more »