Congress is back from recess, and momentum is picking up again around HR 1 – the One Big Beautiful Bill Act. The bill has now moved to the Senate, and we expect significant movement in the coming weeks, with Senate Majority Leader Thune aiming to have it on President Trump’s desk by the 4th of July.
We’re calling on our community to take action now to ensure that the voices of those impacted by bleeding disorders are heard—both in the Senate and in the House, as the bill will return to the House once the Senate has completed its work and we want to continue pressure in both chambers.
To make advocacy as simple and effective as possible, we’re sharing the National Bleeding Disorders Foundation’s (NBDF’s) official action alert using the Quorum grassroots platform.
We must speak up NOW. Urge your representatives to reject harmful cuts and cost hikes. Lives depend on it.
Take Action Now: https://bleeding.quorum.us/campaign/127941/
(Please note: They are still refining the layout, but the action tool is fully functional.)
Thank you for your continued support and advocacy—especially during this critical time for our community. For questions contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643.
