Join us as we chat with Delegate Kathleen Murphy (34th District, Virginia House of Delegates) to learn more about the passage of HB 1995 that created the Rare Disease Advisory Council and its proposed scope of work. Hear more about Del. Murphy’s interest and advocacy for creating the Council AND for her general impressions on the virtual nature of the General Assembly meetings.
VHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics. It is a great opportunity for education, networking, and support for individuals and families. The annual meeting will be held virtually on zoom and will have time for VHF chapter updates with a focus on the work of our board of directors and an exciting keynote presentation from Save One Life founder and board president Laurie Kelley and executive director Chris Bombardier.
If you have been to one of our UNITE for Bleeding Disorders Walk events then you may be familiar with the amazing Jonathan Austin - Juggler, Magician and Entertainer! Come one, come all and be dazzled by Jonathan's spirit-lifting performance and then be prepared to learn one or two magic tricks that you too can show-off to friends and family! We will also spend some time learning more about this years Unite for Bleeding Disorders Walk - don't miss out on this opportunity to give back to your bleeding disorders community!
WE'RE TAKING CAMP ON THE ROAD! This Summer we are working with Camp Holiday Trails to bring an in-person family camp to a park near you and your family!
Find out why practicing gratitude may be good for people living with a chronic condition and learn how to leverage gratitude in your own life.