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Advocacy Chat with Delegate Kathleen Murphy

May 27 @ 7:00 pm - 8:00 pm

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Join us as we chat with Delegate Kathleen Murphy (34th District, Virginia House of Delegates) to learn more about the passage of HB 1995 that created the Rare Disease Advisory Council and its proposed scope of work. Hear more about Del. Murphy’s interest and advocacy for creating the Council AND for her general impressions on the virtual nature of the General Assembly meetings.

Thank you to our advocacy chat sponsors National Hemophilia Foundation (NHF) and Takeda

Read this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer, mobile device/tablet, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org

 


As we gather virtually to discuss, share and learn, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe, productive, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.

Details

Date:
May 27
Time:
7:00 pm - 8:00 pm
Event Categories:
, ,
Website:
https://conta.cc/3atMM9I

Organizer

Heather Conner, VHF Program and Communication Director
Phone:
804-740-8643
Email:
Heather@vahemophilia.org

Venue

Zoom

Website Sponsors

CSL Behring - Biotherapies for Life
CSL Behring - Biotherapies for Life