NBDF hosted the National Research Blueprint Summit January 25-27 in Arlington, VA to announce the final draft of the Blueprint. Based on the product of the State of the Science, the NRB is defining a comprehensive, collaborative, and community-driven national research...
In recent years, the arrival of novel hemophilia treatments that are effective and less burdensome to administer have opened up new possibilities for the consumers of these therapies. This begs the question – How might this evolving landscape be impacting treatment...
The Virginia General Assembly convenes January 10, 2024 and as we prepare for this season of advocacy, we encourage all community members to get involved. We will have opportunities for you to participate virtually and in-person – either way your help will make...
The holiday season is a time for joy, togetherness, and celebration. But for many, it can also be a time of stress, anxiety, and financial strain. Between gift-giving, travel, and social gatherings, the pressure to create a “perfect” holiday can be...