The Virginia Hemophilia Foundation (VHF) strives to serve and support you with education, advocacy, and community building programs that are of high quality and meet a variety of needs. We hope that you have joined us this past year at an event or are considering...
Researchers at the Boston Children’s Program in Cellular and Molecular Medicine and the Harvard Medical School recently made important discoveries relevant to the functioning of von Willebrand factor (VWF). The study, “Flow-induced Elongation of von Willebrand Factor...
Alnylam Pharmaceuticals, Inc. has reported on the death of a hemophilia A patient who had been participating in a Phase 2 open label extension study for the company’s investigational therapy fitusiran which is being developed for patients with hemophilia A and B, both...
(Make a plan. Include your specific health and safety needs when creating your emergency plan. Ready.gov/myplan. Brought to you by the Ad Council and Ready.) September is National Preparedness Month. During the last few months, we have witnessed Americans experience...
What a great week at Camp Youngblood hosted by Camp Holiday Trails (CHT) in Charlottesville. We all experienced camp magic from the youngest campers to the seasoned counselors and staff. Counselors and staff worked tirelessly to make the session extra special!...
The VHF Annual Meeting took us full circle to the beautiful Wyndham Virginia Crossings Hotel, a location where we first met Kelly Waters, 11 years ago! The quaint atmosphere gave us many opportunities to spend both days with new and old friends. On Friday night, we...