Historically, data on infants and toddlers (ITs) with von Willebrand disease (VWD),particularly relevant to bleeding patterns, has been lacking. To address this absence of data, a team of researchers from the U.S. Hemophilia Treatment Center Network (USHTCN) and the...
VHF is honored to nominate Monika Eiden, Global HR Director, AMF Bakery Systems, as our fourth Volunteer of the Year Nominee! Monika is a community member and active volunteer with the chapter as a committee member and recent BOD member. Monika has been involved with...
WOW! VHF would like to give a huge shout-out to all of our amazing teams, sponsors, donors and participants for this year’s Unite for Bleeding Disorders Virtual Walk! Together, we raised $33,243 to help those living with inherited bleeding disorders in this...
Becky Bowers-Lanier | VHF Advocacy Consultant This fall, we have two virtual advocacy events planned; one that already occurred on September 27th, and the other is our annual VHF/HACA Virtual Advocacy Stakeholder and Education Meeting set for November 13th at 4 pm....
A new review article, “The Intersection of Vector Biology, Gene Therapy, and Hemophilia,” was published recently in the journal Research Practice in Thrombosis & Haemostasis (RPTH). It provides a comprehensive overview of the scientific underpinnings of several...
by Joe Pugliese | President and CEO, Hemophilia Alliance September 2021 Hemophilia Alliance Newsletter A little more than a year after the worldwide recall of Stimate, there is cGMP manufactured DDAVP NS available in the USA. The product is being produced and...