Stay Informed & Take Action! Explore key advocacy updates and resources from across the bleeding disorders community:
Confused about the new Medicaid work requirements under the “One Big, Beautiful Bill”? Many patients have questions, especially those not in the expansion category—VCU’s Lauren Dunn, MSW, has created a simple handout to help clarify who is affected and what to expect—read it here.
Join Hemophilia Federation of America (HFA) for the National Community Organizing Call on August 6th to connect with advocates and mobilize around urgent issues.
Read The Commonwealth Institute’s (TCI’s) Virginia Impact Report on how recent federal policy changes could affect health and food access in our state.
Catch up on National Bleeding Disorder Foundation’s (NBDF’s) June 2025 Government Relations Update for the latest federal policy developments impacting our community.
NBDF and HFA have released a joint statement expressing deep concern over reports that the Administration has begun sharing Medicaid enrollee data with the Department of Homeland Security, breaking longstanding patient privacy protections—read the full statement here.
Consider signing up for the Coalition for Hemophilia B’s B-Connected e-newsletter and/or the Hemophilia Alliance Newsletter – they’ve been doing a great job communicating timely updates on advocacy efforts and resources within the bleeding disorders community.
