VHF continues to support the bleeding disorders community with reliable information, programs and services. This support includes advocacy webinars, patient financial assistance, scholarships and updates on COVID-19 and how it specifically impacts the bleeding disorders community. During this stressful time it is important to take care of yourself, your family and your community. We are stronger together and we will get through this together!
Our staff will continue to be available and we appreciate your patience as we learn to navigate this difficult time. Please feel free to email us at info@vahemophilia.org and/or call 804-740-8643 if we can be of assistance.
NATIONAL AND STATE CORONAVIRUS (COVID-19) RESOURCES:
- Centers for Disease Control (CDC)
- IRS.gov – Economic Impact Payments: What you Need to Know
- Official Site of the CDC and the White House (Coronavirus.gov)
- Official Site of the Commonwealth of VA (Virginia.gov)
- U.S. Food and Drug Administration
- Virginia Department of Education (VDOE)
- Virginia Department of Emergency Management
- Virginia Department of Health (VDH)
HEMOPHILIA FEDERATION OF AMERICA (HFA) AND NATIONAL HEMOPHILIA FOUNDATION (NHF) RESOURCES:
- HFA has created COVID-19 resource hub full of statements from medical partners and industry, insurance information, product concerns, as well as mental health resources for our community. Go here to learn more.
- HFA Helping Hands continues to serve the most vulnerable in our community as always. Go here to access their Patient Assistance Portal.
- Go here to listen to the NHF/HFA “Telehealth: Coping During COVID-19” Town Hall Webinar Recording.
- NHF’s newly appointed President and CEO, Leonard A. Valentino, MD will be sending out a weekly Health & Wellness email update. Go here to read.
- NHF’s Community News page posts regular updates on MASAC recommendations, product safety, and more. Go here to learn more.
VHF IMPORTANT UPDATES:
The CDC has recommended that all gatherings over 50 people should be canceled or postponed and Governor Northam has issued a stay at home executive order. As a result, all VHF in-person events until June 10, 2020 are postponed. More information will be provided as we know more.
The following events are now postponed:
- April 19 – Red Tie Soiree
- April 23-25 – Hemophilia Federation of America (HFA) Symposium in Baltimore *Rescheduled for August 24-26 – Go Here to Learn More*
- May 2 – Educational Lunch and Community Event in Roanoke
- May 16 – First Step Program
- May 21 – Educational Dinner in Tidewater Area
- June 4 – Educational Dinner in Richmond
Financial Assistance Program – During this stressful time we want you to know that we are here to help! VHF provides financial assistance to those who need it and we are currently accepting applications to help pay for expenses incurred in the care, treatment, or prevention of an inherited bleeding disorder, basic living expenses, and more. To learn more go here, contact your HTC social worker, or contact Kelly Waters at 804-740-8643 kelly@vahemophilia.org.
Donations – If you are in a financial position to do so, please consider making a donation to VHF. Your support will help to ensure that we get through this crisis and continue to do important work for the bleeding disorders community. Go here to learn more or contact Megan Schowengerdt at 804-740-8643 megan@vahemophilia.org.
IMPORTANT HTC UPDATES:
UVA HTC – Currently at UVA we are continuing to follow the government recommendations to “stay at home”. We are rescheduling visits week by week until restrictions are lifted. Patients will receive a call that their visit has been rescheduled and when we anticipate the reschedule date to be.
We will absolutely see anyone with a problem or a bleed during normal clinic hours Mon – Fri. We are still taking patient phone calls at 434-924-8499 from 8am – 4:30pm Mon – Fri, and we continue to have people on call 24/7 through the page operator 434 – 924-0211 (Pediatric Hematologist on Call). We also now have the capacity to do Telemedicine video visits until we are back to full capacity with clinic visits.
We want everyone to know that we are open and ready to care for their needs, but we are trying to keep them all safe at home as much as possible.
VCU HTC – The VCU HTC is maintaining regular office hours (8am to 4pm, Mon- Fri) with reduced staff coverage in the physical office. Routine comprehensive clinic visits are transitioning to virtual visits. If you have an upcoming appointment scheduled, an HTC team member will be in touch with you with more information.
Due to reduced staffing and teleworking, you may reach the voicemail when calling the office. Messages are being retrieved frequently and you will receive a call back. For after-hours medical emergencies, please call 804-828-0951 and ask for the adult or pediatric hematologist on call.
For up to date information on VCU Health System operations or to create a patient portal to access medical records and communicate with providers, please visit: vcuhealth.org.
