A rejuvenating weekend retreat filled with educational programming and community building. This retreat is open to women age 21 and up with inherited bleeding disorders and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses, carriers, immediate family members).
Educational dinners are a series of educational presentations hosted at restaurants around the state. Facilitators are clinicians, national advocates, and industry experts. Educational dinners enable those affected by inherited bleeding disorders to connect with people from their local community, as well as learn about a range of relevant topics.
Join the HACA/VHF advocacy committee as we present our first in a series of virtual chats. These chats will focus on advocacy topics relevant to the bleeding disorders community. During the first virtual chat, we will discuss the disposition of legislation we followed during the 2020 General Assembly session including bills we opposed and supported and we will also attempt to predict what might happen when the General Assembly returns on April 22nd. We will also spend some time talking about how COVID-19 is affecting you and yours as we maintain social distancing measures. All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in, either by video conference or phone call. Please join us!
Join the HACA/VHF advocacy committee for a virtual chat. This chat brings Miriam Goldstein, HFA Director of Policy, and Becky Bowers-Lanier, advocacy consultant for HACA and VHF, together for a webinar devoted to advocacy in our newly configured COVID world. Join us as we share what we’ve learned since mid-March and how we can maintain our voice when we cannot physically be present. We’ll talk about strategies and answer your questions. All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in, either by video conference or phone call. Please join us!
Join VHF, HTC staff and mentor families for a virtual program for new families! This program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. This program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years.
