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Advocacy Chat with Delegate Kathleen Murphy

Zoom

Join us as we chat with Delegate Kathleen Murphy (34th District, Virginia House of Delegates) to learn more about the passage of HB 1995 that created the Rare Disease Advisory Council and its proposed scope of work. Hear more about Del. Murphy’s interest and advocacy for creating the Council AND for her general impressions on the virtual nature of the General Assembly meetings.

VHF/HACA Advocacy Chat – Getting into Committee

Zoom

Ever wonder how a bill winds its way from a proposed bill, through both houses of the General Assembly to enacted legislation? Committees are the answer -- and where much of the debate about any bill take place. Join us to learn more about the process as we hear from State Senator Ghazala F. Hashmi and Delegate Roxann Robinson - key committee members that work on issues that affect our community.

VHF & HACA Virtual Advocacy Education Meeting

Zoom

Join VHF & HACA for a virtual advocacy education program on Martin Luther King Jr. Day, our traditional date for our annual advocacy day. This program will focus on the 2022 General Assembly. Join in and hear details from advocacy consultant, Becky Bowers-Lanier, about proposed legislation of interest to the bleeding disorders community, its partners and other stakeholders. You will also learn more about the VHF/HACA legislative updates that will occur weekly via zoom during the 2022 General Assembly session and how you might be able to get more involved.

Annual Meeting – Community Member Registration

Virginia Crossings Hotel, Tapestry Collection by Hilton 1000 Virginia Center Pkwy, Glen Allen, VA, United States

VHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. 

Annual Meeting Highlights Include: Sessions on advocacy, aging with a bleeding disorder, mental health, musculoskeletal ultrasound and more; Lyman Fisher Scholarship recognition; VHF chapter updates; on-site children and teen programming with Camp Holiday Trails; and on-site childcare for 5 and under.