RICHMOND – New Family Support and Education

Join VHF for a special program designed to support families of infants and young children diagnosed with inherited bleeding disorders. This event offers an opportunity to connect with the bleeding disorders community and gain valuable education and resources.

Topic: Beyond Bubble Baths: Real Self-Care for Caregivers

Caring for others, especially in the midst of chronic illness—can feel all-consuming, leaving little room for our own well-being. This session goes beyond surface-level self-care and explores deeper, more sustainable ways to restore ourselves while continuing to show up for those we love. Through reflection, discussion, and practical strategies, we’ll explore how to integrate real self-care into our lives in ways that actually stick.

Presenter: Sarahbeth Spasojevich, NCC, MA, MBA, MEd

Sarahbeth Spasojevich is a mental health clinician at Connected Resilience and a mother of three – including Jack, a fourth-generation hemophiliac. As an active member of the Virginia Hemophilia Foundation community, she deeply understands the emotional and practical challenges of caregiving in the rare disease space.

What to Expect:

• A private meeting space for our group
• Continental breakfast provided for all attendees
• Time for Q&A
• Networking opportunities with other parents and families
• Time to enjoy the Richmond Zoo and see Poppy – America’s pygmy hippo princess!

Who Can Attend: This program is tailored for families affected by inherited bleeding disorders with children ages 10 and under who reside in the VHF coverage area and is not open to individuals employed or compensated by Industry.

We look forward to providing you with a supportive and welcoming environment to learn, share, and connect!

Thank you to our current sponsors: CSL Behring, Takeda and VCU-HTC