Resources and Guidance for Schools and Healthcare Providers

Information Forms for Emergency Healthcare Providers

• Emergency Guidelines Form Hemophilia A
• Emergency Guidelines Form Hemophilia A with Inhibitor (taking Hemlibra)
• Emergency Guidelines Form Hemophilia A without Inhibitor (taking Hemlibra)
• Emergency Guidelines Form Hemophilia B
• Emergency Guidelines Form Von Willebrand Disease (Factor)
• Emergency Guidelines Form Von Willebrand Disease (DDAVP)

Information on emergency department visits and how to make a plan: National Bleeding Disorders Foundation Health Equity Toolkit

Go here to find the National Bleeding Disorders Foundation’s (NBDF’S) Nursing Working Group Emergency Alert Card Templates

Dental Care Resources

• Ask the Nurse: Navigating Procedures Safely with a Bleeding Disorder – Jenna Richard, Senior RN – Central Virginia Center for Coagulation Disorders at VCU
• Letter to Dental Health Professional (form to share your diagnosis with your dentist)
• NBDF Steps for Living Dental Care
  • Birth – 8 years
  • 9 – 15 years
  • 16 – 25 years
  • Adults
• World Federation of Hemophilia (WFH) Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders

Inherited Bleeding Disorders Resources to Share

Resources for School Healthcare Providers, Teachers, and Families:

• Basic Information on Hemophilia (from Children’s Hospital of the King’s Daughters)
• Been There, Done That: Tips For The College Bound From Students & Moms
• Field Trips and Extracurricular Activities and Transitioning To A New School (NBDF Steps For Living)
• Hemophilia Special Needs Fact Sheet for Schools (from Nemours Children’s Hospital)
• En español: Hoja informativa sobre la hemofilia (para las escuelas)
• What is Hemophilia
• What is Von Willebrand Disease
• What are Other Rare Bleeding Disorders
• The Care Team: Working Together to Support Students
• Typical Symptoms and First Aid for Hemophilia
• Identifying Types of Bleeds
• Plans to Support Students in School
• A Guide on When to Call your Child’s Hematologist or Pediatrician
• Visual Description of a Joint Bleed (from the World Federation of Hemophilia)
• Hemophilia in Pictures (from the World Federation of Hemophilia)
• Partners in Bleeding Disorders Education (has various units on School Nurse Education, Interactive Case Study, Emergency Care of Bleeding Disorders)

Resources and Guidance Specific to School Settings

• Educating School Faculty and Staff 
• Possible 504 Plan Accommodations
• Hemophilia Federation of America’s (HFA’s) Back to School Toolkit (includes customizable PowerPoint presentations, sample Individual Healthcare Plans, sample 504 plans, and more)
• National Bleeding Disorders Foundation’s (NBDF’s) Steps for Living Guidance for Schools
• IDEA (IEP) vs. 504 Flowchart and Planning for a 504 plan or Individual Educational Plan/IEP (Hemophilia Federation of America)
• HANDI Highlights: Resources for Students Headed Off to College!
• Individualized Health Care Plans (pdf that provides guidance on developing IHPs in Virgina) from the National Association of School Nurses – an IHP is a plan of care written by the registered nurse for students with or at risk for physical or mental health needs (ANA & NASN, 2017). It is the responsibility of the school nurse to annually evaluate the IHP, to reflect changes in the student’s healthcare needs and address nursing interventions and/or student healthcare outcomes.
• Individualized Education Program (webpage that provides information on IEPs in Virginia schools)
• Parent and Educator Resource Guide to Section 504 in Public Elementary and Secondary Schools