Education + Connection “Laughing Through Stress”

 
Join us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend.

The presentation theme will be: Laughing Through Stress

Speaker: Lori K., CSL Behring Common Factors Advocate and Caregiver to 3 sons and 1 granddaughter with hemophilia

Lori K. Bio: When our first child, Jeff, was born, the umbilical cord was wrapped around his neck and his delivery was traumatic for both of us. Then Jeff’s newborn heel prick wouldn’t stop bleeding and his head began to swell. He was whisked out of my arms to a neonatal ICU unit in another hospital. Three days later doctors diagnosed him with severe hemophilia A. My husband and I were shocked—we didn’t even know what hemophilia was! Thankfully, we were immediately introduced to the expertise and support of a hemophilia treatment center and the bleeding disorder community. Refusing to let hemophilia consume us, we stashed it in the back seat and fulfilled our dream of having three children, all of whom just happen to need a little extra help with blood clotting.

Today our three sons are happy, successful adults with lives of their own. Now I enjoy spending time with my grandchildren, including my granddaughter who was also diagnosed with hemophilia A.

Space is limited and priority will be given to those members that live in the South West Virginia Region.

Thank you to our sponsor CSL Behring.