This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will walk through the basics of genetics and how that plays a role in hemophilia. With that knowledge, we will look at how gene therapy is meant to work and discuss both the potential for and the challenges of investigational gene therapy research in hemophilia today.
Join the HACA/VHF advocacy committee for our virtual chat series. These chats focus on advocacy topics relevant to the bleeding disorders community!
During our chat we will learn more about two bleeding disorders community members and advocates who have been elected to serve in their communities, Vaughn Ripley, Brunswick, Maryland City Council Member and State Representative Randi Clites (D-Ravenna), Ohio House District 75.
Join us for a cookie decorating experience as Hemo mom and cookie decorating extraordinaire, Destinee Diprima, leads us through some simple decorating tips and “tricks” this Halloween season with a live virtual class "Happy Haunts Virtual Cooking Decorating Class"!
This virtual community event will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy.
Join us for a presentation that discusses the timeline between the statewide closure of all public schools in March to present day instructional schedules. The main purpose is to provide parents with a variety of strategies to support virtual learning at home.
In partnership with the Hemophilia Association of the Capital Area (HACA), we are offering a virtual Men’s Retreat! Participants will enjoy education and time to gather and share with other people who encounter similar challenges. This retreat is free and open to men age 21 and up with inherited bleeding disorders and/or to men whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses, immediate family members).