VIRTUAL – VHF/HACA Advocacy Stakeholder and Education Meeting

Join community stakeholders within the bleeding disorders community for a virtual education meeting. Stay informed with the latest state and federal advocacy news, connect with fellow Virginians, and collaborate on improving the lives of those affected by bleeding disorders. Share experiences, gain knowledge, and build a stronger community. Go here to download a copy of our 2025 Advocacy Calendar.

MEETING AGENDA

Welcome and Introductions

Advocacy From the Perspective of a Legislative Assistant
Luke Sweeney, Chief of Staff to Delegate Betsy B. Carr

Virginia Bleeding Disorders Program Update (VBDP)
Lauren Dunn, MSW, Health Insurance Consultant, Virginia Bleeding Disorders Program AND Erika J. Martin, MT (ASCP) Program Manager, Virginia Bleeding Disorders Program

What Can We Expect in the 2025 General Assembly
Becky Bowers-Lanier, VHF/HACA Advocacy Consultant

Federal Update
Matt Delaney, Government Relations Manager at National Bleeding Disorder Foundation (NBDF)

Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. 

Thank you to our sponsors: Genentech, NBDF, Pfizer, PhRMA, VCU-HTC, and Takeda

As we gather virtually to discuss, share and learn, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe, productive, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.