WILLIAMSBURG – Medical Symposium at Great Wolf Lodge
September 28 @ 9:30 am - 4:00 pm
The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options, access to care issues and other medical/health related topics. This program will be held at the conference center at the Great Wolf Lodge (GWL) in Williamsburg. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay (all registrants must attend the Medical Symposium meeting for access to the water park and overnight accommodations.)
What To Expect:
*Friday – Family friendly movie night, time at the waterpark, and overnight stay (all Friday activities are optional.)
*Saturday – Breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies, a keynote presentation “Candid Conversations” which is a patient-centric panel discussion on gene therapy from multiple perspectives, breakout sessions with diagnosis specific content, lunch for all ages, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. The meeting will wrap-up by 4:00 pm. Overnight stay and time at the waterpark (optional.)
*Sunday – There are no scheduled meals or activities.
Important Information:
*Registrants’ place/number on the RSVP list will be determined by our Program Registration Guidelines.
*This event is open to ALL AGES (not just for families with household members under 18.)
*There is a $25 registration fee to attend.
To Be Eligible for a Spot You Must Meet ALL the Following Eligibility Criteria:
*Have an inherited bleeding disorder, have a spouse with an inherited bleeding disorder, or be the parent/caregiver of a child with an inherited bleeding disorder.
*Live in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC), hematologist, etc. is in the VHF coverage area.
*To book overnight accommodations for you and/or your family, at least one member of your group must be age 21+.
Thank you to our current sponsors!
STAR: CSL Behring, BioMarin, and Spark Therapeutics
PREMIER: Genentech
CORPORATE: Accredo, Bayer, BioMatrix, Cottrill’s Pharmacy, CVS Health, DrugCo Health, Hoos at Home, Kedrion, and Pfizer