Bleeding Disorders Awareness Month Wrap-Up

Thank you to everyone who donated, bought a t-shirt (you can still purchase one here), attended an event, started a Facebook fundraiser, and more during March in honor of VHF and Bleeding Disorders Awareness Month (BDAM)! Because of your generosity we raised $4,100 and we only need $1,900 in order to meet our goal of $6,000 all in support of our scholarship program. If you did not get a chance to donate but would still like to see scholarship recipients achieve their dreams go here today and make a one-time or re-occurring monthly donation to VHF!

Go here to see photos from our BDAM events.

World Hemophilia Day  “Access for All: Prevention of bleeds as the global standard of care”

April 17, 2023 is World Hemophilia Day. The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”. Building on last year’s theme, the call to action for the community in 2023 is to come together and advocate with local policy makers and governments for improved access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders (PWBDs).

Join your bleeding disorders community in honor of World Hemophilia Day on Mon., April 17 at 6:00 pm in Richmond – World Hemophilia Day 2023: One Family RSVP HERE!

VHF Annual Meeting

Join us Saturday, May 6th for the 2023 VHF Annual Meeting! This year’s meeting will be held at The Hilton Norfolk - The Main along the downtown Norfolk waterfront.

What To Expect: The event will kick off with light breakfast and time to visit with our industry sponsors, followed by education sessions on topics such as advocacy and research, chair yoga, Lyman Fisher Scholarship winners recognition, VHF chapter updates, and on-site childcare provided by A Helping Hand and children and teen programming with Camp Holiday Trails. Then join us at that evening for a community outing to the Norfolk Tides Baseball Game! *Community outing is optional and is not a part of the annual meeting.

Sunday, May 7th at 10:00 am

Bleeding Disorders Awareness Education Celebration At The Virginia Zoo in Norfolk

» Go here to RSVP and learn more about the Bleeding Disorders Community Celebration Event

The VHF Bleeding Disorders Community Celebration is an exciting new event that was designed to raise awareness, increase education, honor the hard work and dedication in the bleeding disorders community, and best of all CELEBRATE and enjoy time with friends and family in a unique setting.*Event is optional and is not a part of the annual meeting.

Educational programs, scheduled meals, community events, and Saturday night overnight accommodations at Hilton Norfolk The Main are provided at no cost for constituents that live in the VHF coverage area. There is a $25 registration fee per household (after you register you will receive a link to pay your fee.)  

NHF Bleeding Disorders Conference (BDC) - Join Us At The National Harbor In DC!

VHF is thrilled that the 75th Annual NHF BDC will take place in the DC Area, at the beautiful Gaylord National Resort & Convention Center August 17-19, 2023. With the meeting being so close we hope to send as many VHF community members as possible using our VHF travel grant via the Terry Lamb Scholarship!

VHF travel grant for NHF’s BDC: VHF’s Terry Lamb Enrichment Scholarship awards can be used to cover costs for the NHF BDC. Typical award amounts are in the range of $250 – $500 per person (not to exceed $2,000 per family). You will be responsible for meals and other incidentals.

VHF travel grant deadline for NHF’s BDC: 11:59 pm, Wednesday, May 10, 2023

Sat., May 20 at 10:00 am RICHMOND – New Family Support And Education Program at Children's Museum

Sun., June 4 at 11:30 am STAUNTON – Community Event at Frontier Culture Museum  

Sun., June 25 at 10:00 am HAMPTON – Community Event at Buckroe Beach Park 

Sat., July 29 at 10:00 am CUMBERLAND – Community Event at Bear Creek Lake State Park

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Washington Days

Pat DeRatto, VHF member and recipient of VHF travel grant for Washington Days

Once a year, in March, representatives from across the country join with the National Hemophilia Foundation for Washington Days to make our voices heard. This year was no exception. A large number of Virginia Hemophilia Foundations members and nearly 400 people from around the country joined together to speak to our Congresspeople and Senators about the issues members of the bleeding disorder community face.

Guilt in Mothers of Children with Hemophilia Focus of New Study

Researchers from the Children’s Healthcare of Atlanta and Emory University recently published the results of a small study investigating the subject of guilt in mothers of children with hemophilia (CWH). 

Ways to Give

Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!

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