May is Mental Health Month: Where to Start |
Each May, Mental Health America (MHA) recognizes Mental Health Month to raise awareness and reduce stigma around mental health. This year’s theme is “Where to Start: Mental Health in a Changing World.” |
Honoring Our History: VHF 50th Anniversary Archives “MANN Platform Points NHF in New Direction” |
As part of our 50th Anniversary year, we’re looking back at powerful stories that reflect the strength and resilience of our community. This month, we’re reflecting on the leaders and movements that shaped the bleeding disorders community. |
World Hemophilia Day 2025 Wrap-Up |
Kathy Mortimer | VHF Volunteer
On April 17th almost 40 members of the Virginia Hemophilia Foundation came together in Williamsburg to recognize World Hemophilia Day. We met at Thai Tara enjoyed dinner and an educational talk on the connection within the global hemophilia community! Two new families were able to attend and meet the community. Everyone had the chance to take a polaroid selfie and catch up with friends and family.
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Beyond Bubble Baths: Redefining Self-Care for Caregivers |
Sarahbeth Spasojevich | LPC, MEd, MA, MBA, NCC
At our April 26th New Family Support and Education Program at the Richmond Metro Zoo, we talked about what self-care really means in this season—not the idealized version, but the small, doable things that help families manage the mental and emotional load of daily life with a bleeding disorder. In “Beyond Bubble Baths: Redefining Self-Care for Caregivers,” we shared simple, meaningful ways to manage the emotional load of daily life with a bleeding disorder. Click the button to read more and explore resources.
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Community Event At TopGolf Virginia Beach |
Sunday, June 8th at 11:00 am
Get Active with YOUR Bleeding Disorders Community at Topgolf Virginia Beach!
A fun and educational community event focused on health, fitness, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder, build relationships within the community, and enjoy the game of golf—no experience required! Lunch and two hours of golf, provided at no cost.
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Community Event At TopGolf Richmond |
Sunday, August 3rd at 11:00 am
Get Active with YOUR Bleeding Disorders Community at Topgolf Richmond!
A fun and educational community event focused on health, fitness, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder, build relationships within the community, and enjoy the game of golf—no experience required! Lunch and two hours of golf, provided at no cost.
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Medical Symposium at Great Wolf Lodge |
September 12–14, 2025
Great Wolf Lodge Conference Center | Williamsburg, VA
The VHF Medical Symposium is a weekend event designed to educate, empower, and connect members of the bleeding disorders community. Attendees will explore current and emerging treatment options, access to care, and other important medical topics. This event includes educational sessions, on-site childcare, waterpark access, meals, and overnight accommodations—all at no cost to eligible VHF constituents ($50 per household registration fee).
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Central Virginia Center for Coagulation Disorders at VCU Welcomes New Team Members |
Eliza Hunt | Financial Program Manager, Central Virginia Center for Coagulation Disorders
The Central Virginia Center for Coagulation Disorders (CVCCD) at VCU is pleased to welcome two new members to our HTC team: Anne-Marie Lillyman, MSN, RN and CJ Smith, AAS. |
NBDF NFRC Features von Willebrand Disease Resources |
The April edition of the NBDF Resource Roundup from the Neil Frick Resource Center (NFRC) spotlights von Willebrand disease (VWD), offering curated tools and information for both healthcare providers and individuals living with VWD. From screening and treatment guidance to psychosocial support, this collection is designed to educate and empower. |
Rare Platelet Disorders Resources |
Learn more about rare platelet disorders, including Bernard-Soulier syndrome (BSS), Glanzmann’s Thrombasthenia (GT), and Platelet Storage Pool Deficiency (PSPD) on NBDF's Steps For Living Website. Go here to download a pdf of the HANDI Highlights resource list on Rare and Ultra Rare Bleeding Disorders.
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