VHF is Celebrating 50 Years of Community, Connection, and Progress Throughout the year, we’ll celebrate this legacy with inspiring articles, stories, and photos, highlighting the achievements and people who shaped our history. The celebration kicks off with our 50th Anniversary event on March 16 at Lewis Ginter Botanical Garden. Together, we’ll honor our past, celebrate the present, and ensure a strong future for the bleeding disorders community! Be sure to RSVP today—we want everyone to join in!
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Register For VHF's Annual Meeting |
Join Us For A Golden Milestone: Honoring Our Past, Building Our Future |
Krista Davidson | VHF Member
Hi friends! As you know, March is Bleeding Disorders Awareness Month. This year will be extra special as the community celebrates 50 years of VHF history. It is humbling to reflect on the suffering we have endured, the challenges we have overcome, and the progress we have made in treating those living with a bleeding disorder. In honor of each other and our loved ones, a new sitting wall and memorial plaque will be unveiled during a special ceremony at the Lewis Ginter Botanical Garden in Richmond.
On Sunday, March 16th after the Annual Meeting please join VHF and your fellow community members in unveiling this memorial. The event will begin at 10:30 am and will be a once-in-a-lifetime experience to commemorate VHF’s legacy. Some highlights will include entertainment, refreshments, a special ceremony to honor our loved ones, and a keynote guest speaker. The event will culminate around 1:00 pm with a walk to the wall and a commemorative photo. I hope everyone will consider attending this special occasion.
If you are unable to attend please consider purchasing VHF's 50th Anniversary merchandise - $1 from every sale supports the creation of VHF’s Sitting Wall, a serene memorial honoring our community, to be unveiled during the celebration or you can make a donation here.
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Apply For A VHF Travel Grant To Attend The 2025 NBDF Bleeding Disorders Conference |
Application deadline for VHF travel grant for NBDF Bleeding Disorders Conference is 5:00 pm, Friday, April 4, 2025 Daniel Abraham | VHF Member and VHF Travel Grant Recipient
"When I first filled out the application, what I had hoped to gain from the experience was an education I had been partially neglecting most of my life. Well, I found that and learned a great deal. I stand fascinated by the advances our medical technology is making and look forward to the future of treatment. As I reflected on my time at the conference during my flight home however, what I actually discovered is that I had gained a few things I hadn't expected to find; a sense of community, responsibility, and obligation to those in the bleeding disorder family. Things I never realized I was missing. In many ways I was already headed in this direction in a desire to help with advocacy efforts, but this conference has catalyzed my decision to be involved on a deeper level."
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Registration Is Now Open For Camp Youngblood |
Application deadline for Camp Youngblood is Wednesday, April 23, 2025
Get ready for an unforgettable week at Camp Youngblood, held at Camp Holiday Trails in Charlottesville, VA, from Sun., July 13–Fri., July 18. This overnight camp is designed for children ages 7–17 with inherited bleeding disorders, their siblings, and children of community members within the VHF or HACA coverage areas. Campers will enjoy a week of fun, learning, and connection with others who share similar life experiences.
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Richmond Days: Advocacy In Action |
On January 26–27, over 20 advocates from across Virginia gathered in Richmond for our annual Richmond Days event in partnership with the Hemophilia Association of the Capital Area (HACA). People of all ages came together to meet with state legislators and discuss two important issues affecting the bleeding disorders community: protecting protecting Medicaid expansion and raising concerns about Prescription Drug Affordability Boards (PDABs).
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Empowering The Next Generation: Join NBDF’s National Youth Leadership Institute (NYLI) |
Application deadline for NYLI is March 1st, 2025 Paxton Mills | VHF member and a current NYLI member
"NYLI is a phenomenal opportunity for young adults hoping to become established leaders in the bleeding disorders community. The organization has introduced me to the incredible staff and volunteers of the National Bleeding Disorders Foundation, as well as other youth affected by bleeding disorders from all across the country. My favorite memories from NYLI are from the annual Bleeding Disorders Conference (BDC), an event which NYLI members are frequently able to participate in through managing and even speaking at sessions across a variety of topics, including but not limited to both disorder-specific and teen programming. The organization values your story as a young community member and provides ample opportunity for you to share your experiences. With NYLI alone, I've been able to travel to the DC area, Nebraska, Atlanta, and San Antonio for bleeding disorders programming and networking."
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Community Resource: Bleeding Disorders Scholarship Opportunities |
For students in the bleeding disorders community, higher education can be financially challenging. Fortunately, multiple scholarships are available to help ease the burden and support your academic journey. Two excellent opportunities for individuals with bleeding disorders to pursue their education with financial support are the VHF Lyman Fisher Scholarship and the Hemophilia Alliance, Joe Pugliese Educational Award.
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FWGBD 7-2-1: All You Need To Know About Periods Podcast – A Focus On Iron |
Iron plays a crucial role in overall health, and its impact is especially significant for those with heavy periods or bleeding disorders. In Episodes 9 and 10 of The 7-2-1 Podcast, hosts Dr. Sweta Gupta and Dr. Nicole Kendel dive into the world of iron with expert Dr. Amanda Jacobson-Kelly from Nationwide Children’s Hospital. In Episode 9: Let’s Iron it Out, they break down the basics of iron deficiency and explore treatment options. Then, in Episode 10: Unfolding IV Iron, they take a deeper look at intravenous iron therapy as a tool for managing anemia.
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How To Cope With Seasonal Depression When You Have A Bleeding Disorder |
Hemaware Bleeding Disorders Magazine | Author: Matt Morgan
Feeling sad or hopeless during the winter months? An HTC social worker explains what you can do about seasonal affective disorder. |
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