As we bid farewell to the warm days of summer, we reflect on the wonderful events that brought us together. We gathered as a community in Hampton for a nature-filled hike at Sandy Bottom Park, cheered on the Roanoke Red Sox, enjoyed a thrilling soccer match with the Richmond Kickers, and Camp Youngblood families spent the day together at Camp Holiday Trails to experience camp "magic" firsthand. These events brought together our community, provided opportunities for education and support, and created lasting memories. We're grateful to everyone who attended and made these summer gatherings a success.
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Back-to-School Resources for the Bleeding Disorder Community |
Join VHF's Advocacy Efforts! |
The Virginia bleeding disorders community thrives thanks to the strong advocacy efforts of members like YOU so make a plan to join us for the Virtual Advocacy, Stakeholder & Education Meeting on Thursday, November 7th. You will learn more about state and federal advocacy news, connect with fellow Virginians, and collaborate on improving the lives of those affected by bleeding disorders. You will also want to save these dates and join us for our 2025 advocacy season. Together, we can make a difference.
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Podcast Highlight: "Collectively CoeXisting" Ep. 54: Elsa & Ann - Discussing X-linked Carrier Status with Your Daughter
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In July, the podcast "collectively coeXisting" by Remember The Girls featured two former VHF members, Elsa and Ann, discussing the important topic of X-linked inheritance and carrier status. Elsa, a student and book lover, and founder of the Red Ink Project shared her personal experiences, while Ann, a mother, advocate, and English professor, offered valuable insights. Tune in to learn more about this informative episode and gain practical advice for navigating these conversations.
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VHF 50th Anniversary Celebration - Save the Date! |
VHF is thrilled to announce its 50th Anniversary celebration! Mark your calendars for Sunday, March 16, 2025, as we commemorate this special occasion at Lewis Ginter Botanical Gardens. Enjoy a day filled with festivities, inspiration, and community. More details to follow.
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The National Bleeding Disorders Foundation's (NBDF's) July/August HANDI Highlights include links to a variety of resources that focus on the biology of pain, plus a variety of approaches to manage it. The selected content includes publications, expert recommendations, articles, and videos meant for individuals with inherited bleeding disorders and their health care providers.
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How PTSD Can Affect People with Hemophilia and Other Bleeding Disorders |
While post-traumatic stress disorder is commonly connected with soldiers, people battling chronic illnesses can have it, too. Here’s how to identify the symptoms and get the help you need. |
VWF/FVIII 1:1 Concentrate Shows High Recovery Rates for VWD |
Use of a 1:1 ratio von Willebrand factor (VWF)/factor VIII (FVIII) clotting factor concentrate (CFC) was reported to show high rates of recovery of FVIII and VWF activity in patients with von Willebrand disease (VWD) in a study reported in the journal Haemophilia. |
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