Loading Events

« All Events

  • This event has passed.

WILLIAMSBURG – Medical Symposium at Great Wolf Lodge

September 28 @ 8:30 am - 4:00 pm

REGISTRATION IS CLOSED.

The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options, access to care issues and other medical/health related topics. This program will be held at the conference center at the Great Wolf Lodge (GWL) in Williamsburg. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay (all registrants must attend the Medical Symposium meeting for access to the water park and overnight accommodations.)

What To Expect From The Weekend:

(Optional) Friday, September 27th, 7:30 pm –

* We will kick off the weekend with a family friendly movie night! Enjoy refreshments and view Redefining Impossible, a 40-minute documentary following five elite athletes living with  hemophilia – as they share their stories of being told that they couldn’t play because of their condition and still persevering to redefine what’s possible for people living with hemophilia. There will be time for Q&A with the film’s Executive Producer, Rob Bradford from Believe Limited.

* If you plan to stay overnight on Friday, you will be able to access the water park any time after opening on that day and you can check in to your room at 4:00 pm (all Friday activities are optional.) 

Saturday, September 28th, 8:30 am –

* The day will start with breakfast and time for you to visit with industry sponsors to learn about the latest treatments and therapies.

* This year’s keynote presentation “Candid Conversations” is a moderated panel discussion that will provide you with a “bird’s eye view” into the real-world experience of both consumers and providers, the path to shared decision-making, and how innovative therapies are changing the landscape of the bleeding disorders community and afternoon breakout sessions will give you a small group experience with diagnosis specific content.

* On-site childcare and children/teen programming with Camp Holiday Trails will be provided.

* You do not want to miss the Science Fair Roadshow, brought to you by Believe Limited, this inspiring, larger-than-life, community-facing exhibit presents teens, adults, and families alike with the opportunity to learn about the science behind bleeding disorders by combining the interactivity of a true “science center” exhibit with the visual style of the classic science fairs we all grew up with.

* Overnight stay for Saturday night is also available so that you and your family can enjoy time with your community and access to the waterpark that evening.

Sunday, September 29th –

* There are no scheduled meals or activities.

Important Information:

* Registrants’ place/number on the RSVP list will be determined by our Program Registration Guidelines.

* This event is open to ALL AGES (not just for families with household members under 18.) To book overnight accommodation for you and/or your family, at least one member of your group must be age 21+.

* Overnight accommodation and scheduled meals will be provided at no cost to VHF constituents. There is a $25 registration fee to attend (a link to pay will be sent out after registration closes on August 16th.)

* All registrants must attend the Medical Symposium meeting for access to the water park and overnight accommodation.

* Overnight stay on Fri. & Sat. and time at the waterpark are optional, you are welcome to attend the meeting only.

* To Be Eligible for a Spot You Must Meet ALL the Following Eligibility Criteria: Have an inherited bleeding disorder, have a spouse with an inherited bleeding disorder, or be the parent/caregiver of a child with an inherited bleeding disorder; Live in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC), hematologist, etc. is in the VHF coverage area.

Thank you to our current sponsors!

STAR: BioMarin, CSL Behring, Novo Nordisk, Sanofi, and Takeda

PREMIER: Genentech

CORPORATE: Accredo, Bayer, BioMatrix, Cottrill’s Pharmacy, CVS Health, DrugCo Health SP, Hoos at Home, Kedrion, Pfizer, Soleo Health, and Superior Biologics.

 

Details

Date:
September 28
Time:
8:30 am - 4:00 pm

Organizer

Heather Conner, VHF Assistant Director
Phone
804-740-8643
Email
heather@vahemophilia.org

Venue

Great Wolf Lodge
549 E Rochambeau Dr.
Williamsburg, VA 23188
+ Google Map
View Venue Website