The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options, access to care issues and other medical/health related topics. This program will be held at Great Wolf Lodge (GWL) in Williamsburg on Saturday, October 15th. This weekend is open to VHF constituents with an inherited bleeding disorder and their immediate family and/or household members. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay.
Highlights Include: Medical Symposium, kids and teens program and lunch for all ages on Saturday (all registrants must attend the meeting for access to the water park and overnight accommodations,) access to GWL water park Saturday and Sunday.*OPTIONAL* Unite For Bleeding Disorders Breakfast & Celebration on Sunday at GWL – must register separately for this event » Go here to learn more
|
Unite For Bleeding Disorders - August Incentive! |
VHF Lyman Fisher Scholarship Recipients |
This past June the Virginia Hemophilia Foundation was thrilled to award six deserving applicants with a Lyman Fisher Scholarship. Recipients were honored in-person at our Annual Education Meeting. Congratulations to each of these scholarship winners, they have demonstrated determination and hard work and we are so proud to have such outstanding young adults in our bleeding disorders community!
|
VHF Board of Directors 2022 - 2023 |
The board of directors is the governing body of VHF. Board members are volunteers that meet periodically to discuss and vote on the affairs of the organization, to support the work of VHF, and to provide mission-based leadership and strategic governance. Board terms align with our fiscal year and begin on July 1st. 2022-2023 VHF Board of Directors: Debbie Baugher, Tahnee Causey, Tory Gilliam – Secretary, Murai Johnson, Vivek Kshetrapal, Kathy Mortimer - President, Don Smith – Treasurer and Amy Walker - Vice President.
|
Family Day Camp at Camp Holiday Trails Wrap-Up |
Eileen Bunn, VHF Member “I feel a sense of belonging participating in Family Camp at Camp Holiday Trails. CHT is a special place where families can have fun together and share stories, resources, and experiences with other families impacted by hemophilia, building a strong community of support at camp and in our everyday lives.” |
Paper Features Q&A Resource on Shared Decision Making and Gene Therapy |
As investigational hemophilia gene therapies move closer to regulatory authorization, community stakeholders have recognized the acute need for people with hemophilia (PWH) and healthcare professionals (HCPs) to be fully engaged in shared decision making (SDM). While the concept of SDM whereby patient and provider collaborate to reach informed treatment decisions has gained support in recent years, the arrival of such a paradigm-shifting will present unique challenges and opportunities.
|
VHF Shareable Resources for Schools and Healthcare Providers |
Looking for bleeding disorder resources specific to school settings? Visit the VHF website for resources you can read, download and share or links to toolkits and helpful websites. |
Thursday, September 15th at 6:00 pm on Zoom
This virtual session is open to men age 21 and up with inherited bleeding disorders and/or to men whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses). Topic will be "Trauma and PTSD in the Bleeding Disorders Community" presented by Dr. Eric Russ, Clinical Psychologist.
Learn more and RSVP ›› |
Thursday, September 29th at 6:00 pm on Zoom Join VHF for a virtual program for families! This program is designed to support families of children with inherited bleeding disorders ages 11+ with community connection and education. Topic will be "Ages and Stages: Tweens and Teens" presented by Juliana S. Bloom, Ph.D.
Learn more and RSVP ›› |
|
|
Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!
|
|
|
Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*
*{{Unsubscribe}}* |
| |
|
|
