As we embark on a season of change, we kindly ask for your understanding. Beginning September 15, our full-time staff will shift from two dedicated team members to one. Rest assured, Heather and our Board of Directors remain fully available to answer your questions and keep our community supported and connected. Email heather@vahemophilia.org or call 804-740-8643 if you have any questions or concerns.
|
Celebrating 50 Years: A Reunion of Hope: The Wise County Hemophilia Clinic |
In honor of our 50th anniversary, we’re revisiting stories that shaped our chapter. This week we look back at the early days of hemophilia care in Southwest Virginia. In 1984, The Roanoke Times highlighted how families, doctors, and patients came together in Wise County for what felt more like a reunion than a clinic. Advances in medicine and the creation of annual clinics brought life-changing improvements for those living with hemophilia in the South West region of Virginia.
Hemophiliacs' clinic in Wise like a reunion
By Paul Dellinger, Southwest Bureau
Go here to read the article from the
Roanoke Times & World News, November 15, 1984 |
VHF Leadership Transition Announcement |
The Virginia Hemophilia Foundation (VHF) would like to share some important and exciting news with our community. On September 15th, our Executive Director, Kelly Waters, will be transitioning into a new role with the Hemophilia Alliance.
Kelly has been the heart of VHF for nearly 20 years, leading with compassion, vision, and dedication. While we will miss her daily leadership and the sense of family she helped create, we are thrilled that she will continue making a difference in the bleeding disorders community through her new position. |
Marketplace & Medicaid Updates: What You Need to Know This Fall |
Big changes are on the horizon for the ACA Marketplaces and Medicaid programs. New federal regulations and the recently signed “One Big Beautiful Bill Act” mean higher costs, tougher eligibility rules, and more paperwork for many individuals and families. While some Medicaid changes won’t take effect until 2027, it’s important to start preparing now.
Go here to take action - urge Congress to protect the Health Care Tax Credit!
Stay informed and explore helpful resources, including handouts on Marketplace and Medicaid changes, insurance toolkits, and recordings from recent sessions. Click here to learn more and access resources. |
Scholarship Spotlight: Daniel Abraham At NBDF BDC |
VHF staff, board members, constituents, and HTC partners joined over 2,000 attendees at NBDF’s 77th Annual Bleeding Disorders Conference in Denver from August 21–23. Thanks to VHF travel grants, eight constituents and their families enjoyed three days filled with educational sessions, networking, and exhibits. A standout moment was seeing VHF members Paxton Mills and Kim Wilt present during the sessions. Mark your calendars now for next year’s conference in Orlando, FL, August 13–15, 2026!
This year, thanks to the VHF Terry Lamb Scholarship, Daniel Abraham was able to attend the conference and bring back insights that will benefit the Virginia bleeding disorders community. From his involvement with the Educate to Elevate campaign, to emphasizing the importance of participating in the Community Voices in Research (CVR) survey, Daniel’s experience highlights the power of advocacy, education, and sharing lived experiences.
We’re proud to support members like Daniel, who return from the national conference with knowledge, inspiration, and actionable ideas. Read Daniel’s full letter here to learn more about his highlights and why your voice matters in shaping research and advocacy. |
Paid Advertisement. VHF does not endorse products or manufacturers. |
Fall Community Event At Blue Ridge Mountain Maze |
Saturday, October 18th at 12:00 pm
A day of fresh air, fall fun, education, and community connection at the Blue Ridge Mountain Maze. This event is perfect for all ages. Explore the Farmy Fun Zone and enjoy the country store with cider donuts, home made ice-cream, and more - plus time together in a private group area in the middle of the fun with easy access to the Farmy Fun Zone – all in a beautiful mountain setting. |
Join Us for Our Kick-Off To Virginia’s 2026 Advocacy Season! |
Thursday, November 6th Virtual Advocacy, Stakeholder & Education Meeting
The Virginia bleeding disorders community thrives because of the passionate advocacy of members like YOU! Make a plan to join us to hear the latest updates on state and federal advocacy, connect with fellow Virginians, and collaborate on ways to improve the lives of those affected by bleeding disorders. Be sure to save these dates and participate in our 2026 advocacy season - together, we can make a difference!
|
Adult Retreat Weekend In Virginia Beach |
Friday, November 7th to Sunday, November 9th Hyatt Place Virginia Beach / Oceanfront
Take time for yourself this fall at the VHF Adult Retreat Weekend! Set against the beautiful oceanfront, this retreat offers a chance to relax, connect, and learn in a supportive community. Whether you’re living with a bleeding disorder or supporting someone who is, enjoy meaningful discussions, educational sessions, and opportunities to build lasting friendships. Don’t miss this chance to recharge, share experiences, and strengthen your connections—reserve your spot today! |
Paid Advertisement. VHF does not endorse products or manufacturers. |
Latest Updates And Resources For The Bleeding Disorders Community |
Resources - Back To School National Conferences – Upcoming Opportunities -
CHES InhibitCon West in Portland, OR, October 3–5, 2025 For the inhibitor community – covering treatment updates, insurance changes, mental health, venous access, pain management, and more.
-
CHES One Drop Rare Bleeding Disorder Consortium in Tampa Fl, November 14–16, 2025 For individuals and families living with ultra-rare factor or platelet deficiencies (FId, FIId, FVd, FVIId, FXd, FXId, FXIII, Glanzmann’s, etc.).
-
HFM National Conference for Women and Teens with Hemophilia in Detroit, MI, October 4–6, 2024 In-person and virtual conference focused on supporting women and teens in the bleeding disorders community.
-
Coalition for Hemophilia B – Men’s Education & Empowerment Retreat in Stone Mountain, GA, September 18–21, 2025 Retreat for men with Hemophilia B. Selected applicants receive a full travel scholarship (airfare or mileage, lodging, and meals).
-
Registration is now open for the free, virtual WFH Global Summit on Women and Girls with Bleeding Disorders, September 25-26, bringing together global experts and advocates to advance care, understanding, and equity for women and girls with bleeding disorders—register here.
|
|
|
Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please email info@vahemophilia.org. We look forward to working with you!
|
|
|
Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*
*{{Unsubscribe}}* |
| |
|
|
