Bleeding Disorders Awareness Month Wrap-Up |
Thank you to everyone who donated, bought a t-shirt, attended an event, started a Facebook fundraiser, and more during BDAM! Because of your generosity we have raised over $5,500 all in support of our scholarship program. If you did not get a chance to donate go here to make a one-time or re-occurring monthly donation to VHF!
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APRIL -
Saturday, 20th VHF Annual Meeting (Natural Bridge) REGISTRATION IS NOW CLOSED
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Sunday, 21st BDAM Education Celebration (Natural Bridge)
MAY -
Saturday, 18th New Family Support and Education Program at the Virginia Living Museum (Newport News)
JUNE - Monday, 3rd VHF Travel Grant Application Deadline for NBDF Bleeding Disorders Conference
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Saturday, 29th Community Event at Sandy Bottom Nature Park (Hampton)
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Camp Youngblood at Camp Holiday Trails |
Join a VHF Committe or the Board of Directors: You Can Make a Difference! |
VHF is currently looking for individuals who have experience and talents that align with the needs of VHF and the interest in deepening their commitment and strengthening the organization by serving on a committee or the board of directors. |
Thank You Catherine for Your Care and Dedication! |
Megan Songer, MSW, LCSW, CHKD Pediatric Hematology/Oncology Social Worker
Changes at CHKD: Nurse Coordinator Catherine Wallace de Melendez has transitioned away from her position at CHKD effective 4/1/2024. Catherine truly enjoyed her time working with bleeding disorder patients and their families over the last 2 years. Catherine brought much to the bleeding disorder program at CHKD and she is going to be greatly missed. Thank you for all of your hard work and passion about this community. A new nurse coordinator will be starting in June 2024 but in the meantime, please continue to contact us and Nurse Pam will cover until then!
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Congratulations Dr. Massey in Being Named to the List of 2024 Exceptional Women in Medicine |
Lauren Dunn, MSW, VCU Adult and Pediatric Outpatient Social Worker
Please join the VCU HTC in congratulating Dr. Gita Massey for being recognized as a 2024 Exceptional Woman in Medicine by Castle Connolly! Dr. Massey serves as the pediatric medical director for the Hemophilia Treatment Center at VCU Medical Center, specializing in all coagulation disorders. Congratulations on this well-deserved recognition, Dr. Massey.
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2024 Session of the General Assembly |
Becky Bowers-Lanier, VHF/HACA Advocacy Consultant
The 2024 Session of the General Assembly adjourned sine die (indefinitely) on Saturday, March 9th. While the term sine die means “indefinitely,” we do know for certain that the Assembly will meet next for its reconvened session on April 17th.
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Virginia Advocates Join the National Bleeding Disorders Foundation (NBDF) for Washington Days |
Gene White, VHF Board Member, and recipient of VHF travel grant for NBDF Washington Days
March 6-9, 2024 the National Bleeding Disorders Foundation (NBDF) gathered in Washington D.C. back in person for Washington Days. Over 400 families from around the country affected with bleeding disorders gathered at the Hyatt Regency in Washington DC including my son Jackson. |
Senator Tim Kaine Thanks Advocates from Virginia |
U.S. Senator from Virginia, Tim Kaine, thanks the Virginians who met with him and shared their stories at this year's Washington Days in support of the HELP Copays Act. |
VHF Travel Grant for NBDF Bleeding Disorders Conference (BDC) |
VHF is pleased to offer a travel grant to attend this national meeting! VHF travel grant deadline: 11:59 pm, Monday, June 3, 2024
NBDF's BDC will be held September 12-14, 2024 in Atlanta, GA. BDC features educational sessions, industry symposia, networking and social events, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia, von Willebrand disease, and rare bleeding disorders. Go here to learn more about NBDF BDC.
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On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event this year is “Equitable access for all: recognizing all bleeding disorders”. The World Federation of Hemophilia (WFH) vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live.
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Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!
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