Bleeding Disorders Awareness Education Celebration Wrap-Up
These past few months have been a wonderful season of recognition, support, and gathering for the Virginia bleeding disorders community. We kicked off the season in March in honor of Bleeding Disorder Awareness Month (BDAM) and wrapped-up with over 85 friends, family members, and supporters on Sunday, May 7th at the Bleeding Disorders Awareness Education Celebration at the Virginia Zoo! Go here to see photos.
It was exciting and heartwarming to see so many of you at our BDAM kick-off events at Topgolf in Richmond and Virginia Beach, at educational dinners throughout the state, at the World Hemophilia Day program, and at our Annual Meeting in Norfolk. Because of YOU, your participation in these events, your donations, your Facebook fundraisers, your purchasing of t-shirts, and more, we were able to raise $8,328.70 during our campaign period March 1st to May 7th!
Congratulations and thank you to all who contributed to the energy and activities of this past BDAM season. We look forward to starting the celebration and awareness raising season again in March 2024.Stay tuned for updates!
VHF Medical Symposium: Registration Is Now Open
The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options, access to care issues and other medical/health related topics. This program will be held at the conference center at the Great Wolf Lodge (GWL) in Williamsburg. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay (all registrants must attend the meeting for access to the water park and overnight accommodations.)
What To Expect: The event will kick off Saturday, September 30th at 10:00 am with light breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies, followed by a keynote presentation, breakout sessions, lunch for all ages, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. The meeting will wrap-up by 4:00 pm.
VHF Community Events - Join Us!
Colburn-Keenan Foundation Individual Grant Program
The Colburn-Keenan Foundation’s charitable giving program provides assistance and support to individuals and families impacted by bleeding disorders. Grants are awarded to meet urgent financial needs or to address special circumstances to improve the quality of life and health of members of the bleeding disorders community. Grant awards are generally considered up to $2,000.00 per calendar year. Go here for a listing of programs and use the button below to visit their website to learn more.
Hemophilia Federation Of America (HFA) Job Readiness Grants
Do not miss out on this opportunity! The HFA Job Readiness Grant provides up to $1,000 for courses, training programs, or certifications that will help bleeding disorders community members gain or maintain sustainable employment. The grant can include computers or items (i.e., scrubs, specialized shoes, supplies, etc.) needed to complete the course, certification, or training program. Applications are processed as soon as they are received.
National Hemophilia Foundation (NHF) Clinical Trial Tool-Kit
Many exciting new medicines, devices and procedures have helped improve care for people with bleeding disorders. These advances have been possible because of new technologies, increases in funding and scientific programs. This NHF tool-kit provides the “must have” information about clinical trials: what they are designed to do, what to expect before and during, and what questions to discuss with your providers to decide if a trial is right for you.
Inhibitor Risk Paper Informed by Genotyping Project
Between 2013-2017, the “My Life Our Future” (MLOF) project offered eligible individuals with hemophilia free genotyping, which is historically hard to access, expensive, and not covered by insurance. Conducted through the laboratory analysis of a single blood sample, genotyping can reveal the specific genetic mutation responsible for a patient’s disease such as those located in the factor VIII and factor IX genes in the case of hemophilia A (HA) and hemophilia B respectively.
Understanding the Medicaid Renewal Dates Calendar
In March 2023, Medicaid returned to its regular renewal operations, and Virginia started reviewing members’ health coverage to make sure they still qualify. Check the DMAS renewal calendar here to learn more about when to expect to receive information, or call Cover Virginia at 1-833-5CALLVA to find out your renewal date. Because the process takes 12 months to renew everyone, it may take several months before you hear anything!
Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at email@example.com. We look forward to working with you!
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