Celebrate Bleeding Disorders Awareness Month

March is Bleeding Disorders Awareness Month (BDAM). BDAM aims to bring together people with inherited bleeding disorders to raise awareness of these rare conditions. Throughout BDAM and up until World Hemophilia Day on April 17th  we will focus our fundraising efforts on our scholarship program. With your help our goal is to raise at least $6,000!

Ways to show support during Bleeding Disorders Awareness Month:

Make a one time donation to VHF or join our monthly giving program – The Hope Society at ANY amount (even $20 a month!)

Spread awareness by sharing our Facebook posts and/or starting your own Facebook Fundraiser to benefit VHF and our community of those living with inherited bleeding disorders!

Buy a t-shirt! VHF has partnered with Bonfire to create a limited edition t-shirt in honor of bleeding disorders awareness month and a portion of the proceeds will go directly to VHF.

Sat., March 4 at 11:00 am VIRGINIA BEACH – Bleeding Disorders Awareness Month Celebration at Topgolf email heather@vahemophilia.org if you would like to attend

Sun., March 5 at 11:00 am RICHMOND – Bleeding Disorders Awareness Month Celebration at Topgolf email heather@vahemophilia.org if you would like to attend

Tues., March 14 at 6:30 pm ROANOKE – Education + Connection “Gene Therapy In Hemophilia” RSVP HERE

Thurs., March 23 at 6:30 pm NEWPORT NEWS – Education + Connection “Unlock the Science of Investigational Gene Therapy Research For Hemophilia” RSVP HERE

Thurs., March 30 at 6:30 pm RICHMOND – Education + Connection “Make it Work: Bleeding Disorders In The Workplace” RSVP HERE

Mon., April 17 at 6:00 pm RICHMOND – World Hemophilia Day 2023: One Family RSVP HERE

Sat., May 6 at 9:00 am NORFOLK – Annual Education Meeting RSVP HERE

Sun., May 7 at 10:00 am NORFOLK – Bleeding Disorders Awareness Education Celebration - Virginia Zoo RSVP HERE

VHF Lyman Fisher Scholarship

Application Deadline: 11:59 pm (EST), Friday, March 10, 2023

The Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher, a teacher, researcher, and clinician in hemostasis.

Scholarship Award: Scholarships are one-year awards in the amount of $2,000 for a full academic year. The scholarships may be used at any accredited nonprofit college, university, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses.

Camp Youngblood Is Back!

Application Deadline: Friday, March 31, 2023

Dates: Sunday, July 16 – Friday, July 21, 2023

Location: Camp Holiday Trails 

Camp Youngblood is a week-long overnight camp for children with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area.

Want to Make a Difference and Serve the Mission of VHF? Join the VHF Board of Directors!

Are you a community member who would like to deepen your commitment to strengthening the organization by serving on the board? Or are you an individual who is not directly connected to the bleeding disorders community, but has interests, experience, and talents that align with the needs of VHF? Each year, VHF looks for engaged, qualified candidates to serve a two-year term on our board of directors beginning on July 1st.

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Advocacy Update

The 2023 General Assembly adjourned “sine die” on Saturday, February 25th, but with work to continue on finalizing the second year of the biennial budget bill. The reconvened session is scheduled for Weds, April 12th, for the legislators to weigh in on any of the Governor’s actions on the many bills that they have forwarded to him for his consideration. For the political wonks reading this, if you click on this link, you can see the session statistics.

HFA Word From Washington: The Complexity of Unwinding Medicaid

The long-heralded Medicaid “unwinding” has begun. As previously reported, state Medicaid programs have, since the start of the COVID-19 pandemic, operated under a law that prohibited them from disenrolling Medicaid enrollees for the duration of the public health emergency (PHE). 

Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care

Join WFH on March 8th for a 2023 International Women’s Day Webinar. The objective of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” is to highlight fertility challenges, raise awareness of neglected issues and discuss how to improve management of WGDB with a multidisciplinary team. 

NHF Community Voices In Research

Community Voices in Research (CVR) is a partnership between NHF and the inherited bleeding disorder (BD) community! CVR is a community-powered research registry allowing those with an inherited BD and their non-affected family members to document their experiences. Your responses will help ensure that the community's needs, concerns, and questions are accounted for in new research initiatives and NHF programs.

NHF Bleeding Disorders Conference (BDC) At The National Harbor In DC!

VHF is thrilled that the 75th Annual NHF BDC will take place in National Harbor, Maryland (DC Area), at the beautiful Gaylord National Resort & Convention Center August 17-19, 2023. With the meeting being so close we hope to send as many VHF community members as possible using our VHF travel award via the Terry Lamb Scholarship!

VHF travel award for NHF’s BDC: VHF’s Terry Lamb Enrichment Scholarship awards can be used to cover costs for the NHF BDC. Typical award amounts are in the range of $250 – $500 per person (not to exceed $2,000 per family). You will be responsible for meals and other incidentals.

VHF travel award deadline for NHF’s BDC: 11:59 pm, Wednesday, May 10, 2023

Ways to Give

Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!

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