Unite For Bleeding Disorders - September Incentive! |
VHF Advocate Shared Story At Rep. Abigail Spanberger Inflation Reduction Act Press Conference |
On Thursday, August 25, U.S. Rep. Abigail Spanberger joined local healthcare leaders and Virginians living with chronic diseases to discuss how the Inflation Reduction Act — which Spanberger helped pass and the President signed into law — will lower drug costs for seniors and extend health insurance tax credits for middle-class families. Thank you to VHF volunteer and advocate, Steve Spasojevich who was able to attend and share his family's story - thanks Steve!
"I was honored to represent the Virginia Hemophilia Foundation, and all members of the bleeding disorder community, at the press conference on the Inflation Reduction Act hosted by Representative Spanberger. I shared how vital the extensions of protections in the Affordable Care Act are to members of the community in order to access the healthcare needed to survive. It was a great experience, and I am so glad that the voices of the bleeding disorder community are being heard." |
Welcome VCU Bleeding Disorders Program New Team Members: Amy Newcombe and Sidney Glass |
The VCU Bleeding Disorders Program is excited to announce the addition of two new team members: Amy Newcombe and Sidney Glass. |
2022 National Hemophilia Foundation (NHF) Bleeding Disorder Conference |
NHF’s 2022 BDC took place in Houston, TX August 25th-27th and the big takeaway was that it was great to be back in person and see so many familiar faces! BDC featured a lineup of dynamic speakers who provided information and insights on the evolving landscape of treatment for hemophilia, von Willebrand disease, and rare bleeding disorders and separate sessions for chapter staff, HTC staff, consumers and more. We are excited to announce that next year's BDC will be in Washington DC August 17-19 and VHF will be providing travel grants to help cover costs associated with attendance. We plan to have a large turn-out of VHF constituents and we hope to see you there! Check our website soon for more information on how to apply.
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Heading Back to School Requires Planning for Girls With Hemophilia |
How to design a hemophilia care plan for school by Jennifer Lynne | August 12, 2022 | Hemophilia News Today
Dust off those backpacks, girls, it’s time for the school year to begin! When your daughter has hemophilia or another type of bleeding disorder, sending her to school can be overwhelming. But we’ve come a long way since my school days. Children today are fortunate to have access to treatment without worries of HIV/AIDS or hepatitis, as in years past. The stigma around these issues in the 1980s no longer exists. Communication about hemophilia with educators can be open and positive, and a learning experience for all.
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September Is National Preparedness Month - Use These Community Resources To Get Prepared! |
Thursday, September 29th at 6:00 pm on Zoom Join VHF for a virtual program for families! This program is designed to support families of children with inherited bleeding disorders ages 11+ with community connection and education. Topic will be "Ages and Stages: Tweens and Teens" presented by Juliana S. Bloom, Ph.D.
Learn more and RSVP ›› |
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Thursday, October 20th at 12:00 pm - Zoom
Join constituents, advocacy committee members, and community stakeholders from throughout Virginia for a virtual advocacy education meeting and learn about developing and providing testimony in legislative and regulatory meetings, as well as applying and serving on local and state-based boards and commissions. Learn more and RSVP ›› |
Thursday, November 3rd at 6:00 pm - Zoom
This virtual session is free and open to women age 18 and up with inherited bleeding disorders and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers, spouses, immediate family members). The topic will be "A Pathway for Best Care: The Reproductive Years" In this session, attendees will learn about how to identify the symptoms of a bleeding disorder and how to effectively manage the onset of menorrhagia, family planning and childbirth. Presenter: Dr. Sarah O’Brien, Pediatric Hematologist at Nationwide Children’s Hospital
Learn more and RSVP ›› |
Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!
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