VHF Annual Meeting - RSVP By Friday, June 10th!

Join VHF at the Virginia Crossings Hotel & Conference Center in Glen Allen on Saturday, June 25th for our Annual Education Meeting!

Annual Meeting Highlights and Sessions Include: Understanding all sides – Keys to effective grassroots advocacy on the state and federal level, Looking from the Outside in: Musculoskeletal Ultrasound, Strategies for Managing Child, Adolescent, and Caregiver Mental Health, Aging as a Person with a Bleeding Disorder and more; Lyman Fisher Scholarship recognition; VHF chapter updates; and on-site children and teen programming with Camp Holiday Trails. » Go here to view the meeting agenda

Register Today for the Unite For Bleeding Disorders Walk!

REGISTER TODAY to help us raise $35,000 for this year’s Unite Walk! Every dollar raised for the Unite Walk stays 100% local to VHF and goes toward supporting our many educational events, advocacy efforts, and community programs.

NEW THIS YEAR - "Walk Your Way" After registering yourself and/or your team you can then decide when and where you want to walk! Choose your neighborhood, favorite park, the beach, the options are endless! Send VHF photos of your walk and then, plan to gather yourself and your friends and family to celebrate with us on Sunday, October 16th at Great Wolf Lodge in Williamsburg, VA – if you are unable to coordinate a walk for your team or join us for the celebration you can still register as a virtual walker and fundraise or donate!

Terry Lamb Enrichment Scholarship Recipient: Soren Johnson

Hello, my name is Soren Johnson, and I am a senior at Old Dominion University, and this is an in depth look at a trip taken thanks to the Terry Lamb Enrichment Scholarship. I was able to take a trip to New York City for a class through Old Dominion University (ODU). During this class we were given a week in NYC to take tours with different brands and get a look at the entire process of selling apparel.

VHF Chosen As The Next Tom Leonard's "Tom's Wishing Well" Charity

If you are in the Richmond area between June 13th  - 27th and you are looking for some fresh, local produce then stop by Tom Leonard's Farmers Market (located at 4150 Tom Leonard Dr. Glen Allen, VA 23060) and make a wish at the wishing well in support of the Virginia Hemophilia Foundation!

During those two weeks VHF will receive all of the money collected from Tom Leonard’s Wishing Well - a place for customers exiting the store to drop in loose change and at the end of the time period there will be a penny for penny match from Tom himself! We are thrilled at the opportunity to spread awareness and excited for people in the community to become more familiar with bleeding disorders and the work of VHF!

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Join Us In Celebrating The Class Of 2022!

Paxton Calder will be attending the University of Richmond next year. She plans to study biology and communication/language with the hopes of working towards a doctorate in some form of scientific research, using her passion for STEM and exploration to make a difference in the world. 

Kiera Davidson graduated this year from Hidden Valley High School. In addition, she graduated with honors from the Burton Center for Arts and Technology. Kiera received a scholarship and will be attending Virginia Western Community College in the fall. She is part of the Virginia Western Two-Year College Transfer Grant Program. She will be studying Liberal Arts, and after two years, she hopes to transfer to VCU to study Mass Communication.

Jack Spasojevich will be attending James Madison University and plans to double-major in French and Integrated Science and Technology.  He also enjoys coding, biking, and drumming, and hopes to join drumline with JMU.

Levi Walker has been homeschooled from PreK-12th grade at Maryfield Academy. His passions include robotics, computer programming, and music. He serves as robotics team captain and control systems team lead for his FIRST Robotics Team 122, NASA Knights. Levi enjoys teaching others about engineering and robotics through STEM outreach earning the Presidential Volunteer Service Award for three years. He leads vocal worship at Peninsula Community Chapel Student Ministries. In the fall of 2022, Levi plans to pursue a degree in Computational Modeling and Data Analytics at Virginia Tech. 

Wade Wickline graduated from Staunton River High School on May 28th. He is continuing to take Welding classes at CVCC in Lynchburg & will complete his certificate program this fall. Wade will also be attending VWCC in Roanoke this fall in the Mechatronics Program with a focus in design.

HFA Off To College Toolkit 

The road to independence and adulthood often travels through a college town. On the HFA toolkit page, you'll find resources about preparing and making the transition from high school to campus life. The toolkit has resources that are specific to living with a bleeding disorder and others that are more general, but are applicable if you or your child will need accommodations to be a successful student.

Summer Events And Programs 

Join your bleeding disorders community for both in-person and virtual events! Go here to view our calendar page and learn more ››

Gene Therapy: Where Are We Now and What’s on the Horizon

The following article, “Gene Therapy: Where Are We Now and What’s on the Horizon,” which appears in this month’s Hemaware magazine, highlights research presented at the National Hemophilia Foundation’s 16th Workshop on Novel Technologies and Gene Transfer for Hemophilia, held back in November 2021 in Washington, DC. It includes a concise recap of exciting advances occurring in the field of gene and other novel therapies. The update also provides background on the fundamental science underpinning gene therapy and hemophilia genetics, for those who may be new to the subject. To access the article, please click here or email handi@hemophilia.org.

To sign up to regularly receive Hemaware magazine, click here.

Ways to Give

Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!