As we close out 2024, we’re filled with gratitude for the amazing community that makes up VHF. This year has been filled with connection, growth, and meaningful progress toward our mission to support and serve those impacted by inherited bleeding disorders. In this update, you’ll learn more about what we have been up to and what’s to come in 2025—including our 50th anniversary celebration!

Thank You for Your Generous Support on Giving Tuesday!

We are thrilled to share that, thanks to your incredible generosity, we not only met our Giving Tuesday goal of $1,400 but surpassed it! Together, we raised $2,400—enough to purchase five VainSim kits and more. Additionally, we are excited to share that $400 of this total came from employee matching gift programs, further amplifying the impact of your support. Go here to learn more about matching gift programs.

Celebrating The Season

On Sat., Dec. 7th over 50 community members came together for a Winter Gathering, and it was a heartwarming way to kick off the holiday season! Guests enjoyed refreshments, caught up with friends, and then embarked on a lively Tacky Lights Bus Tour of Richmond. This cherished tradition brought holiday cheer to attendees of all ages. Thank you to everyone who joined us and to our sponsors CSL Behring and Takeda.

Make Your Voice Heard!

It’s advocacy season, and we invite you to join us in making a difference for the bleeding disorders community. This time of year we come together to ensure that our voices are heard by state legislators. With your help, we can advocate for policies that improve access to care and resources for those whose lives are impacted by inherited bleeding disorders. Visit our VHF events page for more details.

Women’s Retreat Weekend

VHF invites you to a rejuvenating weekend retreat at the Shalom House Retreat Center  Sat., Feb. 15 - Sun.,Feb. 16, designed for women affected by or connected to inherited bleeding disorders. This special weekend offers opportunities to learn, grow, and connect in a peaceful and supportive environment. Register by Mon., Feb. 3, to reserve your spot—spaces are limited!

Register For VHF's Annual Meeting

Join us for VHF’s Annual Meeting Fri., March 14–Sun., March 16 at the Hilton Richmond Hotel & Spa/Short Pump. This special event brings together our community to learn, connect, and support one another. Held during Bleeding Disorders Awareness Month, the Annual Meeting features educational sessions, networking, and time to celebrate the achievements of our community.

VHF 50th Anniversary Celebration! A Golden Milestone: Honoring Our Past, Building Our Future

Celebrate 50 Years of VHF at the beautiful Lewis Ginter Botanical Garden! On Sun., March 16th  everyone is welcome to join us for this special celebration as we come together to honor 50 years of support, connection, and progress within our bleeding disorders community. Set against the backdrop of Lewis Ginter’s 50 acres of year-round beauty this event offers a perfect space for reflection and together we’ll honor our past, celebrate our present, and look forward to a bright future.

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Registration is Now Open: Camp Youngblood 2025

Get ready for an unforgettable week at Camp Youngblood, held at Camp Holiday Trails in Charlottesville, VA, from Sun., July 13–Fri., July 18. This overnight camp is designed for children ages 7–17 with inherited bleeding disorders, their siblings, and children of community members within the VHF or HACA coverage areas. Campers will enjoy a week of fun, learning, and connection with others who share similar life experiences.

New to camp? Join us for a virtual information session on Thurs., Jan., 16 at 7:00 pm to learn more about the camp experience and get your questions answered. Whether you're ready to send your kids this year or just exploring the idea, this session is for you!

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Coalition For Hemophilia B: Family Meetings On The Road Will Be In Richmond!

Sat., Feb. 8 Join The Coalition for Hemophilia B for the Family Meetings on the Road in Richmond and connect with the hemophilia B community! This family-friendly event offers interactive learning, engaging activities, and opportunities to share experiences with others. Don't miss this chance to build connections and have fun!

Member Spotlight: Former VHF Lyman Fisher Scholarship Recipient Jackson White

The Lyman Fisher Scholarship application is now open and VHF is proud to celebrate the incredible accomplishments of Jackson White, a former Lyman Fisher Scholarship recipient. Currently pursuing graduate studies at the University of Oxford, Jackson is conducting groundbreaking research in genetic therapies for cardiovascular diseases. His work not only exemplifies the talent...

VHF Community Resources: Education for Teens and Tweens who Menstruate

According to the CDC Bleeding Disorders in Women page, in the US, as many as 1% of WGPPM have a bleeding disorder, and many are unaware of their condition. Some examples of bleeding disorders include inherited platelet disorders,  von Willebrand disease and hemophilia. It is important that tweens and teens learn the signs of a bleeding disorder, feel empowered to talk to a trusted...

VHF Proudly Supports Groundbreaking Research through the Judith Graham Pool Fellowship

VHF is thrilled to share an exciting update from the National Bleeding Disorders Foundation (NBDF) about the impact of our generous support. As one of the contributing organizations to the Judith Graham Pool (JGP) Postdoctoral Research Fellowship, we are proud to help advance cutting-edge research that drives innovation and hope for individuals living with bleeding disorders.

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