Important Update on NBDF Washington Days Registration

We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF).

NBDF has announced changes to the registration process, including a shortened deadline and limited spots for each state since Washington Days is expected to fill quickly. Given the recent changes, if you are still interested in attending, please contact Kelly Waters, Executive Director, no later than Tuesday, December 3rd for more details. As directed by NBDF, priority for registration and/or travel grants will be given to constituents who (that are not employed or compensated by industry) have actively participated in previous advocacy initiatives. We encourage you to reach out promptly if you’d like to take part in this impactful event.

For questions contact Kelly Waters at kelly@vahemophilia.org  or 804-920-0283.

2025 NBDF Washington Days

NBDF's Washington Days takes place March 5 – 7, 2025, in Washington, DC. This national event brings together individuals impacted by inherited bleeding disorders to advocate for critical issues, including federal funding, improved coverage affordability, and access to care. Join advocates from across the country to meet with legislators and make your voice heard. 

For questions contact Kelly Waters at kelly@vahemophilia.org  or 804-920-0283.

Join VHF & HACA for our 2025 Advocacy Season!

Virtual General Assembly Check-In

Every Tuesday, January 14 - February 18, 2025 @ 12:00 pm

(*No meetings Jan. 21 & 28)

Gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant, Becky Bowers-Lanier, on what to look for, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. Open to all community members.

REGISTER HERE

Virtual Advocacy Education Training Program

Tuesday, January 21, 2025 @ 7:00 pm

Join in and hear details about proposed legislation and state policy issues that focus on access to quality healthcare. This training will be in preparation for Richmond Days but you do not have to be registered for Richmond Days to participate. Open to all community members.

REGISTER HERE

Richmond Days

Monday, January 27, 2025 @ 9:00 am

An opportunity to advocate for policies that improve access to care, support, and resources for those living with bleeding disorders. Your voice can directly impact legislation that affects the lives of individuals with bleeding disorders by meeting with your state legislators. Open to all community members.

REGISTER HERE

What to Expect: We will reserve space in the General Assembly building from 9:00 am to 10:30 am and aim to schedule two in-person legislative visits for each participant—one with your State Senate office and one with your State Delegate office. You may be joined by other advocates during these meetings and have opportunities to participate in additional legislative visits. On Sunday, January 26th there will be an optional education dinner and hotel rooms available for VHF/HACA community members at Hampton Inn & Suites Richmond – Downtown

Ways to Give

Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!

Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*

*{{Unsubscribe}}*