As the leaves change and the fall air settles in, we’re excited to update you on what’s happening at VHF. October is a busy time as we gear up for upcoming events to close out 2024. We're also feeling nostalgic, with a special throwback to our 2011 Community Event & Fall Festival. It’s a reminder of the strong bonds we've built and how, together, we can continue to support one another and grow as a united community! |
Medical Symposium: A Day of Learning and Giving |
Our Medical Symposium on September 28th at Great Wolf Lodge welcomed over 150 community members for a day of learning, connection, and fun for all ages. Attendees raised over $4,000, helping VHF continue its vital work in education and advocacy for the bleeding disorders community. We’re also grateful to the National Bleeding Disorders Foundation (NBDF), Believe Limited, and our sponsors for their contributions, which made this event a tremendous success.
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Amber is Making a Difference! |
Amber Beall, age 11, is making a difference! Grateful for VHF’s support this year, which included sponsoring her trip to Camp Youngblood and Great Wolf Lodge for this year's Medical Symposium, and the Terry Lamb Enrichment Scholarship for her musical theater class. Inspired by a shirt she wore, Amber even raised $20 through her lemonade stand, saying, “I came up with the idea because of a shirt I was wearing also I wanted to spread awareness about hemophilia one cup of lemonade at a time.” Thank you Amber!
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VHF Attends the NBDF Bleeding Disorders Conference |
VHF staff, board members, constituents, and HTC partners attended NBDF’s 76th Annual Bleeding Disorders Conference in Atlanta from September 12-14. Thanks to a travel grant, six constituents and their families experienced three incredible days of educational sessions, networking, and exhibits. A standout moment was watching two young adults, Paxton Mills and Soren Johnson, present during the sessions. Save the date for next year’s conference in Aurora, Denver, CO, from August 21-23, 2025!
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VHF Celebrates Young Athletes at the Gettin' in the Game Junior National Championship |
VHF nominated two participants for this year’s 22nd Annual Gettin’ in the Game Junior National Championship (JNC), where children and their caregivers from over 50 chapters across the country traveled to Henderson, Nevada, from September 20-22, 2024, to participate in this annual event. Here’s what Liam (Mr. ESPN) had to say about his experience: "My name is Liam Brinkley and I was chosen for JNC. I had an amazing time. I made a lot of new friends. Everyone there was so nice and encouraging. I got the nickname 'Mr. ESPN' because I made two Willie Mays over-the-shoulder catches and a diving catch. I learned a lot from the coaching and scrimmage game. I can’t wait to go back!"
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Sid Glass Shines as APP Rising Star! |
During National Advanced Practice Provider (APP) Week (September 25-29),the invaluable contributions of APPs in healthcare were celebrated. We're especially proud to highlight our very own VCU-HTC's Sid Glass, FNP, who was honored with the APP Rising Star award! Sid's dedication and expertise at the VCU Hemophilia Treatment Center make him a true asset to our community. Congratulations, Sid! We're so fortunate to have you.
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Get Involved: Virginia is for Voters |
Mark your calendars for the November General Election! Voters can participate by mail, early in-person, or on Election Day, November 5th. For more information, visit Vote.Virginia.gov. Let’s make our voices heard!Then join us for the Virtual Advocacy, Stakeholder & Education Meeting on November 7th, where you’ll gain insights into the latest state and federal advocacy news, connect with fellow Virginians, and collaborate on strategies to improve the lives of those living with bleeding disorders.
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Get Ready for Open Enrollment in Virginia's Insurance Marketplace! |
Open enrollment for Virginia's insurance marketplace is just around the corner! The open enrollment period for Plan Year 2025 begins Friday, November 1, 2024. This is your chance to explore health coverage options that suit your needs. During this period, you can sign up for new plans, switch existing coverage, or adjust your current policy. For more information on available plans and eligibility requirements, be sure to visit Virginia's insurance marketplace.
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NBDF Celebrates Factor X Day |
NBDF's virtual Factor X Awareness Day event is on October 10th and this year's theme is all about building connections, so come and meet others who share your experience. You'll hear personal stories and learn about valuable resources from the National Bleeding Disorders Foundation. Factor X Deficiency is an ultra-rare bleeding disorder that makes it hard for your blood to clot. This happens when a protein called Factor X is missing or not working right. Because of this, blood clots don’t form properly, so you might bleed more easily. Only about 1 in 500,000 to 1 million people have this condition, which is also called Stuart-Prower Factor Deficiency, named after the first two people who were diagnosed.
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