VHF Advocacy Update Fall 2024 |
As a valued member of Virginia’s bleeding disorders community, your vote in the upcoming election is essential. The leaders we elect—from local representatives to the President—will shape policies that directly affect our community's health, well-being, and access to resources.
By voting, you help shape a healthier, more supportive future for everyone in our community. Keep reading for a comprehensive update on all thing's advocacy related. If you have questions or would like to get more involved in our advocacy efforts email Kelly Waters at kelly@vahemophilia.org.
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Virtual Advocacy, Stakeholder & Education Meeting: Join Us! |
Be part of this informative virtual meeting on Thurs., Nov. 7th at 4:00 pm with fellow stakeholders in the bleeding disorders community. This meeting is an opportunity to stay updated on the latest state and federal advocacy efforts, connect with advocates across Virginia, and collaborate on initiatives to improve the lives of those affected by bleeding disorders.
Meeting Highlights: Gain insights from Luke Sweeney, Chief of Staff to Delegate Betsy B. Carr, on advocacy from a legislative assistant perspective.
Learn about the Virginia Bleeding Disorders Program (VBDP) with updates from Lauren Dunn, MSW, Health Insurance Consultant, Virginia Bleeding Disorders Program AND Erika J. Martin, MT (ASCP) Program Manager, Virginia Bleeding Disorders Program.
Hear from VHF/HACA Advocacy Consultant Becky Bowers-Lanier on the 2025 General Assembly and get a federal update from Matt Delaney, Government Relations Manager at NBDF.
Join us to share experiences, expand your knowledge, and strengthen our community!
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National Bleeding Disorders Foundation (NBDF) Government Relations Update - Fall 2024 |
Stay informed about the latest developments impacting the bleeding disorders community! Check out the September 2024 National Bleeding Disorders Foundation (NBDF) Government Relations Update for insights on policy changes and advocacy efforts. |
VHF Travel Grant Application for National Bleeding Disorders Foundation (NBDF) Washington Days |
VHF is pleased to offer travel grants so constituents can attend NBDF's Washington Days. This national meeting is an opportunity for people affected by inherited bleeding disorders to travel to Washington DC on March 5 – 7, 2025 to advocate for issues that are important to them. Come and gather together with hundreds of volunteer advocates from across the US to meet with legislators and staff to discuss issues important to our community such as federal funding for bleeding disorder programs and supporting policies that increase affordability of coverage, and access to care.
VHF travel grant deadline: 5:00 pm, Monday, January 6, 2025
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Thank you for your support of the Virginia Hemophilia Foundation (VHF). For some popular ways to give back and help us serve the inherited bleeding disorders community in Virginia, go here. If you have other ideas or questions, please contact Kelly Waters, Executive Director, at info@vahemophilia.org. We look forward to working with you!
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