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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20260604T183000
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DTSTAMP:20260514T215523
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UID:7213-1780597800-1780603200@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Educational Dinner “Shared Decision Making”
DESCRIPTION:RSVP HERE  \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Cooper’s Hawk Winery & Restaurant 733 Lynnhaven Mall Loop\, Virginia Beach\, VA 23452 \nProgram Topic: Shared Decision Making \nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information. \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Virginia Beach area. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/virginia-beach-educational-dinner-shared-decision-making/
LOCATION:Cooper’s Hawk Winery & Restaurant\, 733 Lynnhaven Mall Loop\, Virginia Beach\, VA\, 23452\, United States
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DTSTART;VALUE=DATE:20260627
DTEND;VALUE=DATE:20260629
DTSTAMP:20260514T215523
CREATED:20260408T033034Z
LAST-MODIFIED:20260408T205318Z
UID:7251-1782518400-1782691199@vahemophilia.org
SUMMARY:RICHMOND - HACA & VABDF Advocacy Education Summit
DESCRIPTION:RSVP HERE BY MAY 28!\nHACA & VABDF Advocacy Education Summit: An educational weekend for all ages! Are you ready to make an impact? Join HACA and VABDF for a weekend of advocacy training in Richmond. Learn to use your voice to impact legislation that affects the lives of people living with bleeding disorders. \nGO BEHIND THE SCENES\nSaturday | 11:00 AM: To kick off the weekend join us for an optional lunch and guided tour of the historic Virginia State Capitol. \nGET EMPOWERED\nSaturday | 1:30 PM: We’ll move over to the Hilton Richmond Downtown to join advocates from across Virginia. We have some great local and national speakers lined up to share tips on effective advocacy. We’ll cover things like:Telling your story: Practical tips and practice sessions to help you feel confident\, Navigating hurdles: What to do when you’re facing insurance denials or formulary changes\, and Advocacy at home: We’ll show you how to find your legislators’ contact info and how to set up meetings in your own town – no need to drive to Richmond to make a difference! Saturday night\, we’ll host an educational dinner\, and hotel rooms are available for HACA/VABDF members. \nSOMETHING FOR ALL AGES\nWe really want this to be an event with something for all ages so we’ve set up specific tracks for adults\, teens\, and kids\, plus childcare for the little ones. We’re also mixing in some fun to keep the energy up (the kids will love the on-site video game truck!). \nThis event includes educational programs\, scheduled meals\, community activities\, and overnight accommodations for constituents living within the HACA & VABDF coverage area. \nThank you to our current advocacy sponsors and supporters: CSL Behring\, EveryLife Foundation\, Genentech\, Hemophilia Alliance\, National Bleeding Disorders Foundation\, Novo Nordisk\, PhRMA and Takeda. \nOptional: Sunday\, June 28 Community Event at TopGolf Richmond\nAfter a busy Saturday\, we’ll head over to Top Golf Richmond on Sunday. It’s a great chance to get active with your family and enjoy some friendly competition. While we’re there\, you can visit with our sponsors to hear about the latest treatments and therapies. Golf is a safe\, healthy activity for our community\, and we’d love to end the weekend outside and moving with all of you.
URL:https://vahemophilia.org/event-program/richmond-advocacy-education-summit-an-educational-weekend-for-the-whole-family/
LOCATION:Hilton Richmond Downtown\, 501 East Broad Street\, Richmond\, VA\, 23219\, United States
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DTSTART;TZID=America/New_York:20260628T110000
DTEND;TZID=America/New_York:20260628T140000
DTSTAMP:20260514T215523
CREATED:20260501T030229Z
LAST-MODIFIED:20260501T030907Z
UID:7261-1782644400-1782655200@vahemophilia.org
SUMMARY:RICHMOND – Community Event at TopGolf
DESCRIPTION:RSVP Here!  \nGet Active with YOUR Bleeding Disorders Community at Topgolf Richmond! \nJoin the Virginia Bleeding Disorders Foundation (VABDF) on Sunday\, June 28 for a fun and educational community event focused on health\, fitness\, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder\, build relationships within the community\, and enjoy the game of golf—no experience required! \nPriority will be given to attendees of the HACA & VABDF Advocacy Education Summit on June 27th. \n🎯 What to Expect: \n\nA supportive and engaging environment\nCommunity building and family fun\nLunch and two hours of golf\, provided at no cost\n\nEducational Topic: TBD \nThis event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VABDF coverage area. \nVABDF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge\, find support\, and enjoy time together. \nWe can’t wait to see you there! \nThank you to our current sponsor(s):
URL:https://vahemophilia.org/event-program/richmond-community-event-at-topgolf-2/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
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