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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20260303T190000
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DTSTAMP:20260210T003331Z
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UID:7223-1772564400-1772568900@vahemophilia.org
SUMMARY:VIRTUAL - Education Session "Discover a New  Investigational Approach  to VWD Treatment"
DESCRIPTION:RSVP HERE!\nJoin Us for a Virtual Education Session during VWD Awareness Week\nMarch is Bleeding Disorders Awareness Month\, and in recognition of Von Willebrand Disease (VWD) Awareness Week (March 1–7)\, we are pleased to host the virtual educational session “Discover a New Investigational Approach to VWD Treatment” featuring Star Therapeutics. \nStar Therapeutics is currently investigating VGA039\, a potential once-monthly subcutaneous prophylactic treatment for VWD. \nIf you or someone in your family has any type of VWD or you are curious about new therapies in the bleeding disorders community\, we invite you to join us for this informative and engaging session. Dr. Laura Guido\, Head of Medical Affairs at Star Therapeutics\, will discuss: \n\nHow VGA039 works\nThe clinical development pathway for this investigational therapy\nEarly clinical trial results\nInformation about the VIVID Clinical Trials\, including how to explore eligibility and participation\n\n\nFeatured Speaker\nLaura Guido\, PharmD\, MBA\, BCPSExecutive Director\, Medical Affairs\, Star Therapeutics \nDr. Guido is a clinical pharmacist who leads Medical Affairs for VGA039 at Star Therapeutics. Prior to joining Star\, she supported clinical development for hemophilia A gene therapy trials at BioMarin and spent several years working in anticoagulation at Boehringer Ingelheim. Before transitioning to industry\, Dr. Guido practiced as a clinical pharmacist.
URL:https://vahemophilia.org/event-program/virtual-education-session-discover-a-new-investigational-approach-to-vwd-treatment/
LOCATION:Zoom
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DTSTART;VALUE=DATE:20260313
DTEND;VALUE=DATE:20260316
DTSTAMP:20260312T174950Z
CREATED:20251011T014039Z
LAST-MODIFIED:20260312T174950Z
UID:7157-1773360000-1773619199@vahemophilia.org
SUMMARY:STAUNTON - Annual Education Meeting
DESCRIPTION:REGISTRATION IS NOW CLOSED. If you would like to be added to the waitlist email Heather at info@vahemophilia.org.\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \n✨ Annual Education Meeting: Celebrating Community and Connection \nFriday\, March 13 to Sunday\, March 15\, 2026 \nHotel 24 South\, 24 S Market St.\, Staunton\, Virginia \nVABDF’s Annual Meeting brings together individuals and families affected by inherited bleeding disorders for a weekend of education\, support\, and connection. This special event offers opportunities to learn about the latest in treatment and care\, share experiences\, and strengthen our community through networking and collaboration. \nAs we gather\, we’ll also celebrate March as Bleeding Disorders Awareness Month — a time to raise awareness\, promote education\, and honor the dedication and achievements of our incredible bleeding disorders community. Together\, we’ll learn\, connect\, and create lasting memories! \nWhat to Expect *Please Note That These Plans May Change*: The event kicks off Friday evening at 7:00 pm with an education session on “Caregiver Burnout”\, dinner\, and time to catch up with friends and family. Saturday begins with breakfast and an opportunity to explore exhibits hosted by our generous industry sponsors\, showcasing the latest treatments and therapies. The day continues with engaging educational sessions\, updates from VABDF\, and on-site childcare and programs for ages 0-17. \nOvernight Accommodations: We are pleased to offer overnight accommodations at the Hotel 24 South for Friday\, March 13\, and Saturday\, March 14. \nRegistration Fee: There is a $25 registration fee per household and payment instructions will be sent via email after registration closes. This event includes educational programs\, scheduled meals\, community activities\, and overnight accommodations for constituents living within the VHF coverage area. \nTentative Schedule:\nFriday\, March 13\n7:00 PM: Educational Dinner “Caregiver Burnout” \nSaturday\, March 14\n8:30 AM – 9:30 AM: Breakfast and Exhibit Visits\n9:30 AM – 4:00 PM: Educational Presentations\, Exhibit Visits\, Lunch\, Snack Breaks\, and More\n4:00 PM: Meeting Wrap-Up \nSunday\, March 15\n8:00 AM – 9:30 AM: Education Breakfast\n10:30 AM Community Event at the Frontier Culture Museum * This community event is optional and is not a part of the annual meeting. \nThank you to our current Annual Meeting sponsors: Accredo by EVERNORTH\, Bayer\, BioMatrix\, CSL Behring\, Genentech\, Hemabiologics\, Hemophilia Alliance\, InfuCare Rx\, Novo Nordisk\, Pfizer\, Sanofi\, Soleo Health\, Superior Biologics\, Takeda\, UVA-HTC\, and VCU-HTC
URL:https://vahemophilia.org/event-program/staunton-annual-education-meeting/
LOCATION:Hotel 24 South\, 24 S Market St\, Staunton\, Virginia\, 24401
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DTSTART;TZID=America/New_York:20260325T180000
DTEND;TZID=America/New_York:20260325T193000
DTSTAMP:20260311T164305Z
CREATED:20260303T181025Z
LAST-MODIFIED:20260311T164305Z
UID:7242-1774461600-1774467000@vahemophilia.org
SUMMARY:ROANOKE - Educational Dinner "A Focus on Mental Well-being"
DESCRIPTION:RSVP HERE  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Billy’s Roanoke \nProgram Topic: A Focus on Mental Well-being\n \nMental health is a state of well-being and is an important topic to talk about for everyone\, including those living with a bleeding disorder. That’s why we’ve partnered with an expert to discuss ways to navigate mental health\, as it includes our emotional\, psychological\, and social well-being. \nSpeaker: Kendra Wrisley\, Rare Blood Community Liaison\, Mid-Atlantic Territory\, Novo Nordisk \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the South West Virginia area. \nThank you to our sponsor\, Novo Nordisk\, for supporting this program.
URL:https://vahemophilia.org/event-program/roanoke-educational-dinner-a-focus-on-mental-well-being/
LOCATION:Billy’s\, 102 Market St SE\, Roanoke\, 24011\, United States
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