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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20260210T183000
DTEND;TZID=America/New_York:20260210T193000
DTSTAMP:20260502T012634
CREATED:20251212T010221Z
LAST-MODIFIED:20260126T235425Z
UID:7197-1770748200-1770751800@vahemophilia.org
SUMMARY:VIRTUAL BRANDED EDUCATION - Learn About HYMPAVZI™ (marstacimab-hncq)
DESCRIPTION:RSVP HERE \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for a virtual educational session presented by Pfizer to learn more about Hympavzi a rebalancing treatment option for hemophilia. This session is intended for people living with hemophilia\, parents\, partners\, and caregivers\, and anyone interested in learning more about treatment options and shared decision-making with a health care provider. Registered participants that attend the program are eligible to receive a gift card\, one per household.  \nYou’ll hear:\n• The science behind rebalancing therapy\n• Clinical trial data\n• Safety information\n• Information on administration\n• Shared decision-making tips for patients and caregivers \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \n\nImportant notes\nThis is a branded educational program presented in partnership with Pfizer. The information shared is for educational purposes and is not medical advice. Always talk with your hemophilia treatment center (HTC) or health care provider about what’s right for you. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/virtual-education-learn-about-hympavzi-marstacimab-hncq/
LOCATION:Zoom
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DTSTART;TZID=America/New_York:20260219T183000
DTEND;TZID=America/New_York:20260219T200000
DTSTAMP:20260502T012634
CREATED:20260116T052449Z
LAST-MODIFIED:20260204T005738Z
UID:7212-1771525800-1771531200@vahemophilia.org
SUMMARY:CHESAPEAKE - Educational Dinner "Understanding Your Health Insurance Options"
DESCRIPTION:RSVP HERE  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Black Pelican Seafood Company Greenbrier | Chesapeake\, VA \nProgram Topic: Understanding Your Health Insurance Options\, designed for patients\, caregivers\, and families who want to feel more confident navigating health insurance decisions. \nWe understand health insurance can be confusing. We are here to help you understand your insurance options so you can identify the best plan for you.\nJoin us for an informative session to learn about health insurance options and how health insurance changes may affect your coverage and treatment costs. \nSpeaker: Wendy GlennRN\, BSN\, Rare Disease Hybrid Account Manager\, Genentech \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Chesapeake area. \nThank you to our sponsor\, Genentech\, for supporting this program.
URL:https://vahemophilia.org/event-program/save-the-date-educational-dinner/
LOCATION:Black Pelican Seafood Company Greenbrier\, 1625 Ring Rd \, VA\, Chesapeake\, VA\, 23320\, United States
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DTSTART;TZID=America/New_York:20260223T190000
DTEND;TZID=America/New_York:20260223T200000
DTSTAMP:20260502T012634
CREATED:20251212T012045Z
LAST-MODIFIED:20260126T235707Z
UID:7198-1771873200-1771876800@vahemophilia.org
SUMMARY:VIRTUAL – Camp Youngblood Information Session
DESCRIPTION:REGISTER HERE!\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2025\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VABDF for a virtual information session via Zoom on Monday\, February 23\, at 7:00 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VABDF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE One week out from the event you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping us ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session-3/
LOCATION:Zoom
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