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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20251106T160000
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DTSTAMP:20260615T102828
CREATED:20250612T185055Z
LAST-MODIFIED:20251031T022000Z
UID:7076-1762444800-1762452000@vahemophilia.org
SUMMARY:VIRTUAL – VHF/HACA Advocacy Stakeholder and Education Meeting
DESCRIPTION:RSVP HERE \nThursday\, November 6\, 2025 | Time 4:00 – 6:00 pm | Held via Zoom \nJoin fellow Virginians and community stakeholders from across the bleeding disorders community for an engaging virtual education session focused on advocacy. Stay informed with the latest state and federal advocacy news\, connect with community members\, and collaborate on improving the lives of those affected by bleeding disorders. Share experiences\, gain knowledge\, and build a stronger community. \nAgenda highlights will include what to expect in the 2026 Virginia General Assembly and updates on federal policy and legislation. \nYou will receive the Zoom link in a separate email from heather@vahemophilia.org. \nLet’s come together to learn\, connect\, and make a difference. \nThank you to our current sponsors: Genentech\, National Bleeding Disorders Foundation NBDF\, Pfizer\, Takeda\, UVA-HTC\, and VCU-HTC \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-advocacy-stakeholder-and-education-meeting-3/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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DTSTART;VALUE=DATE:20251107
DTEND;VALUE=DATE:20251110
DTSTAMP:20260615T102828
CREATED:20250612T211224Z
LAST-MODIFIED:20251017T021342Z
UID:7077-1762473600-1762732799@vahemophilia.org
SUMMARY:VIRGINIA BEACH-Adult Retreat Weekend
DESCRIPTION:THIS EVENT IS NOW FULL. Please email info@vahemophilia.org if you woudl like to be added to the waitlist. \n🌊 Virginia Beach Adult Retreat Weekend\nNovember 7–9\, 2025 | Hyatt Place Virginia Beach / Oceanfront 3601 Atlantic Ave\, Virginia Beach\, VA 23451 \nRelax. Learn. Connect. \nTake time for yourself this fall at the VHF Adult Retreat Weekend — a rejuvenating oceanfront getaway designed for education and meaningful connection. Whether you live with a bleeding disorder or support someone who does\, this retreat offers space to rest\, learn\, and grow — all while connecting with people who truly understand your journey. \nWeekend Highlights \nFriday Evening – Kick off the weekend with a casual welcome and optional social hour. It’s the perfect chance to ease into the retreat\, meet new people\, and reconnect with old friends. \nSaturday – Our Main Day Together (go here to view the meeting agenda) \n*Morning: Shared breakfast followed by engaging educational sessions. \n*Sessions & Speakers: Joint and bone health with Chris Guelcher\, RN-BC\, MS\, PPCNP-BC\, Building resilience in the face of challenges and Caring for caregivers with Kate Nammacher\, MPH\, and Your Voice Matters: How You Can Shape the Future of Bleeding Disorders Research with VHF community member Paxton Mills \n*Wellness Activity: Light Refreshments & Group Wellness Activity: Chair Massages. Enjoy time relaxing\, sharing reflections\, and connecting with peers. Light refreshments will be available\, along with chair massages provided by The Well Virginia Beach. \n*Enjoy your evening exploring the Virginia Beach boardwalk and local dining options. A great chance to relax after a long day\, connect with friends\, or simply take in the ocean views! \n\n📝 Important Details\nThe VHF Adult Retreat is designed for VHF constituents age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by an inherited bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply) and is not open to individuals employed or compensated by Industry. \nEducational program\, scheduled meals\, and Friday and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $50 registration fee to attend (a link to pay will be sent out after registration closes on October 16th.) \nThank you to our current sponsors: Genentech\, NBDF\, Takeda\, and UVA-HTC
URL:https://vahemophilia.org/event-program/virginia-beach-adult-retreat-weekend/
LOCATION:Hyatt Place Virginia Beach / Oceanfront\, 3601 Atlantic Ave\, Virginia Beach\, VA\, 23451
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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