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X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20250404
DTEND;VALUE=DATE:20250405
DTSTAMP:20250131T173946Z
CREATED:20241213T042625Z
LAST-MODIFIED:20250131T173946Z
UID:6891-1743724800-1743811199@vahemophilia.org
SUMMARY:APPLICATION DUE: VHF Travel Grant for NBDF Bleeding Disorders Conference
DESCRIPTION:VHF Travel Grants to National Meetings: The Virginia Hemophilia Foundation (VHF) is pleased to offer Travel Grants to attend national meetings as part of the Terry Lamb Enrichment Scholarship. National meetings enable our community to come together and exchange information on treatment and technology. Click here to learn more about the Terry Lamb Enrichment Scholarship program. \nNational Bleeding Disorders Foundation (NBDF) Bleeding Disorders Conference (BDC) features educational sessions\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. Go here to learn more about NBDF BDC. \nMeeting Dates: August 21 – 23\, 2025 \nMeeting Location: Aurora-Denver\, CO \nVHF travel grant deadline:5:00 pm\, Friday\, April 4\, 2025 \nGo here to apply online via JotForm.\nGo here to download the PDF version of the application.
URL:https://vahemophilia.org/event-program/application-due-vhf-travel-grant-for-nbdf-bleeding-disorders-conference/
LOCATION:Virginia
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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DTSTART;TZID=America/New_York:20250417T183000
DTEND;TZID=America/New_York:20250417T200000
DTSTAMP:20250415T183302Z
CREATED:20250312T191230Z
LAST-MODIFIED:20250415T183302Z
UID:6989-1744914600-1744920000@vahemophilia.org
SUMMARY:WILLIAMSBURG - World Hemophilia Day 2025 "One Family" Program
DESCRIPTION:THIS EVENT IS NOW FULL – Please email heather@vahemophilia.org to be put on the wait list. Thanks!\nYou’re invited to a World Hemophilia Day Event!\nSanofi’s 2025 One Family program will focus on the innate ties that bind the bleeding disorders community. This family friendly event will explore shared experiences\, how to forge deeper relationships\, and how the power of connection uplifts everyone. \nWho: This VHF Educational Dinner is tailored for individuals and families of all ages affected by inherited bleeding disorders who are VHF constituents and their family and/or household members. \nWhat: An interactive and educational event\, where you will receive helpful information that will foster a sense of connection within the global hemophilia community in recognition of World Hemophilia Day 2025! There will be activities such as beaded bracelet making\, instant camera selfie stations\, DIY photo frames\, and photo prop crafts. After the education session there will be plenty of time for discussion\, catching up\, and enjoying time with your family and friends! Dinner will be provided and there is no fee to attend. \nWhere: Thai Tara Sushi 240 Mclaws Circle Unit 117\, Williamsburg\, VA 23185 – Serving Thai food\, Japanese Hibachi\, Sushi\, and more!\n \nWhen: Thursday\, April 17th – World Hemophilia Day! \nThank you to our sponsor Sanofi.
URL:https://vahemophilia.org/event-program/williamsburg-world-hemophilia-day-2025-one-family-program/
LOCATION:Thai Tara Sushi\, 240 Mclaws Circle Unit 117\, Williamsburg\, VA\, 23185\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250423
DTEND;VALUE=DATE:20250424
DTSTAMP:20250425T130110Z
CREATED:20250328T173059Z
LAST-MODIFIED:20250425T130110Z
UID:7005-1745366400-1745452799@vahemophilia.org
SUMMARY:APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
DESCRIPTION:Application Closed Wednesday\, April 23\, 2025 \nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are excited to partner once again for Camp Youngblood (CYB) — a week-long overnight camp designed just for kids in our inherited bleeding disorders community! \n\nAbout Camp Youngblood\n📅 Dates: Sunday\, July 13 – Friday\, July 18\, 2025📍 Location: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nCamp Youngblood is open to children ages 7–17 who: \n\nHave an inherited bleeding disorder\nAre siblings of a child with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\n\nAll campers must reside within the VHF or HACA coverage areas. \nKids will enjoy a week of fun\, connection\, and growth—surrounded by peers who understand their challenges and experiences. Learn more about the 2025 Camp Youngblood admission guidelines. \n\nHow to Apply\nStep 1: Pre-Screening SurveyAll applicants\, including returning campers\, must complete a short pre-screening survey. This helps determine eligibility. \nYou will be notified of your eligibility within one week by VHF or HACA. \nStep 2: Camp ApplicationIf eligible\, you’ll receive a link to the official Camp Youngblood application\, managed by Camp Holiday Trails. \nCost: $25 registration fee per child \n\nImportant Deadlines\nApplication Closed Wednesday\, April 23\, 2025All Paperwork & Medical Assessments Due: Friday\, June 6\, 2025Welcome Emails Sent to Confirmed Campers: Friday\, June 13\, 2025 \n\nCamp Youngblood operates on open enrollment—not first come\, first served. Applications are reviewed carefully based on the admission guidelines\, so please ensure all deadlines are met to be considered. \n\nThank You to Our 2025 Sponsors\nNovo Nordisk\, Pfizer\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/application-due-camp-youngblood-at-camp-holiday-trails/
LOCATION:Virginia
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DTSTART;TZID=America/New_York:20250426T100000
DTEND;TZID=America/New_York:20250426T120000
DTSTAMP:20250425T130207Z
CREATED:20241213T044132Z
LAST-MODIFIED:20250425T130207Z
UID:6894-1745661600-1745668800@vahemophilia.org
SUMMARY:RICHMOND - New Family Support and Education
DESCRIPTION:Registration is closed\, email heather@vahemophilia.org if you have any questions. \nJoin VHF for a special program designed to support families of infants and young children diagnosed with inherited bleeding disorders. This event offers an opportunity to connect with the bleeding disorders community and gain valuable education and resources. \nTopic: Beyond Bubble Baths: Real Self-Care for Caregivers \nCaring for others\, especially in the midst of chronic illness—can feel all-consuming\, leaving little room for our own well-being. This session goes beyond surface-level self-care and explores deeper\, more sustainable ways to restore ourselves while continuing to show up for those we love. Through reflection\, discussion\, and practical strategies\, we’ll explore how to integrate real self-care into our lives in ways that actually stick. \nPresenter: Sarahbeth Spasojevich\, NCC\, MA\, MBA\, MEd \nSarahbeth Spasojevich is a mental health clinician at Connected Resilience and a mother of three – including Jack\, a fourth-generation hemophiliac. As an active member of the Virginia Hemophilia Foundation community\, she deeply understands the emotional and practical challenges of caregiving in the rare disease space. \nWhat to Expect: \n\nA private meeting space for our group\nContinental breakfast provided for all attendees\nTime for Q&A\nNetworking opportunities with other parents and families\nTime to enjoy the Richmond Zoo and see Poppy – America’s pygmy hippo princess!\n\nWho Can Attend: This program is tailored for families affected by inherited bleeding disorders with children ages 10 and under who reside in the VHF coverage area and is not open to individuals employed or compensated by Industry. \nWe look forward to providing you with a supportive and welcoming environment to learn\, share\, and connect! \nThank you to our current sponsors: CSL Behring\, Genentech\, Takeda and VCU-HTC
URL:https://vahemophilia.org/event-program/richmond-family-support-and-education/
LOCATION:Richmond Metro Zoo\, 8300 Beaver Bridge Rd.\,\, Moseley\, VA\, 23120\, United States
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