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X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20250204
DTEND;VALUE=DATE:20250219
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LAST-MODIFIED:20250123T233952Z
UID:6872-1738627200-1739923199@vahemophilia.org
SUMMARY:VIRTUAL – Virginia General Assembly Weekly Check In
DESCRIPTION:REGISTER HERE\nJoin VHF & the Hemophilia Association of the Capital Area (HACA) for an informal\, virtual General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. These check-ins are open to all community members. \nOnce you register you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Feb 4\, 2025  12:00 – 12:30 PM\nTues.\, Feb 11\, 2025  12:00 – 12:30 PM\nTues.\, Feb 18\, 2025  12:00 – 12:30 PM \nGo here to download 2025 VHF HACA Advocacy Calendar \nThank you to our current sponsor(s): National Bleeding Disorders Foundation (NBDF) and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff.Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in-3/
LOCATION:Zoom
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DTSTART;TZID=America/New_York:20250116T190000
DTEND;TZID=America/New_York:20250116T200000
DTSTAMP:20260427T081507
CREATED:20241213T031201Z
LAST-MODIFIED:20241213T031355Z
UID:6889-1737054000-1737057600@vahemophilia.org
SUMMARY:VIRTUAL – VHF/HACA Camp Youngblood Information Session
DESCRIPTION:RSVP HERE!\nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2025\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VHF for a virtual information session via Zoom on Thursday\, January 16\, at 7:00 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VHF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session-2/
LOCATION:Zoom
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DTSTART;TZID=America/New_York:20250121T190000
DTEND;TZID=America/New_York:20250121T200000
DTSTAMP:20260427T081507
CREATED:20240822T202945Z
LAST-MODIFIED:20241217T164231Z
UID:6813-1737486000-1737489600@vahemophilia.org
SUMMARY:VIRTUAL – 2025 Advocacy Education Training
DESCRIPTION:REGISTER HERE\n  \nJoin VHF and the Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education training program that will focus on the 2025 Virginia General Assembly. Join in and hear details about proposed legislation and state policy issues that focus on access to quality healthcare.This training will be in preparation for Richmond Days but you do not have to be registered for Richmond Days to participate. Open to all community members. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n» Go here to download the 2025 VHF Advocacy Calendar \nThank you to our current sponsor(s): Takeda  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. » Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-2025-advocacy-education-training/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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DTSTART;TZID=America/New_York:20250127T090000
DTEND;TZID=America/New_York:20250127T103000
DTSTAMP:20260427T081507
CREATED:20240822T202659Z
LAST-MODIFIED:20250123T235138Z
UID:6811-1737968400-1737973800@vahemophilia.org
SUMMARY:Richmond Days
DESCRIPTION:REGISTER HERE\nRSVP Deadline: Thursday\, January 16\, 2025 \nMonday\, January 27\, 2025: Join VHF and the Hemophilia Association of the Capital Area (HACA) for an opportunity to advocate for policies that improve access to care\, support\, and resources for those living with bleeding disorders. Your voice can directly impact legislation that affects the lives of individuals with bleeding disorders by meeting with your state legislators. Open to all community members. \nWhat to Expect: We will reserve space in the General Assembly building from 9:00 am to 10:30 am and aim to schedule two in-person legislative visits for each participant—one with your State Senate office and one with your State Delegate office. You may be joined by other advocates during these meetings and have opportunities to participate in additional legislative visits. \nSunday\, January 26\, 2025: There will be an optional education dinner and hotel rooms available for VHF/HACA community members at Hampton Inn & Suites Richmond – Downtown 700 East Main Street – Suite A\, Richmond\, Virginia\, 23219. \nWe hope you’ll join us on Tuesday\, January 21\, 2025\, at 6:00 pm for our Virtual Advocacy Education Training where we’ll cover tips for your visits and share our 2025 legislative priorities\, RSVP here. \nThank you to our current sponsor(s): CSL Behring\, Genentech\, National Bleeding Disorders Foundation (NBDF)\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/richmond-days-2/
LOCATION:General Assembly Building\, 201 North 9th St.\, Richmond\, 23219\, United States
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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