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PRODID:-//Virginia Bleeding Disorders Foundation - ECPv6.15.18//NONSGML v1.0//EN
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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20241009T180000
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DTSTAMP:20260405T175228
CREATED:20240726T023445Z
LAST-MODIFIED:20240924T173519Z
UID:6788-1728496800-1728505800@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - Educational Dinner
DESCRIPTION:Join us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. PLEASE NOTE: The physical well-being and exercise component of this program has been canceled. \nEducational Dinner\nTime: 6:00 pm \nLocation: Crozet Pizza 5794 Three Notch’d Rd\, Crozet\, VA 22932 \nThe topic will be: The Joint Movement: Come Together: The Intersection Between Joint Health\, Hemophilia and Joint Pain \nAn interactive workshop focused on the importance of joint health for those living with hemophilia.   \nSpeaker: Nick Cady\, Community Relations & Education Manager\, Sanofi \nThe educational dinner is for VHF constituents of all ages (and their immediate family and/or household members) and there is no fee to attend. \n\n \nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/charlottesville-educational-dinner-and-physical-wellbeing-and-exercise-program/
LOCATION:Crozet Pizza\, 5794 Three Notch'd Rd.\, Crozet\, VA\, 22932
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241017T183000
DTEND;TZID=America/New_York:20241017T200000
DTSTAMP:20260405T175228
CREATED:20240807T145603Z
LAST-MODIFIED:20240807T145603Z
UID:6802-1729189800-1729195200@vahemophilia.org
SUMMARY:CHESAPEAKE – Educational Dinner
DESCRIPTION:Join us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nLocation: Cutlass Grille Restaurant 25 Eden Way N #700\, Chesapeake\, VA 23320 \nThe topic will be: Shared Decision Making \nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information. \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease\n \nSpace is sometimes limited and if so\, priority will be given to those members that live within the Hampton Roads region. \nThank you to our sponsor Pfizer.
URL:https://vahemophilia.org/event-program/chesapeake-educational-dinner/
LOCATION:Cutlass Grille\, 725 Eden Way N\, Ste 700\, Chesapeake\, VA\, 23320
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T183000
DTEND;TZID=America/New_York:20241023T200000
DTSTAMP:20260405T175228
CREATED:20240807T030050Z
LAST-MODIFIED:20241021T173213Z
UID:6797-1729708200-1729713600@vahemophilia.org
SUMMARY:WINCHESTER – Educational Dinner
DESCRIPTION:Unfortunately\, this educational dinner has been canceled. Please contact info@vahemophilia.org for more information. \nJoin us Wednesday\, October 23rd at 6:30 pm for an educational program for VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: IJ Canns American Grille \nThe topic will be: Gene Therapy for Hemophilia \nPresentation on the advances in gene therapy research for hemophilia.Join us for a session which dives into gene therapy for hemophilia\, how it works\, and the goals of gene therapy. \nSpeaker: Betsy Koval\, Patient Resource Navigator\, CSL Behring\n		\n			\n				\n			\n			\n		 \n		\n			Betsy Koval is a Patient Resource Navigator with CSL Behring and will be working with patients who are interested in gene therapy. She has over 15 years of experience in the bleeding disorders community. Betsy has industry experience as a senior clinical educator and in training within learning and development. Prior to that she was the lead pediatric and adolescent transition nurse coordinator at the Hemophilia of Georgia Center for Bleeding and Clotting Disorders at Emory University and Children’s Healthcare of Atlanta. She has presented posters and spoken at regional and national conferences on bleeding disorders and transition of care. She was a certified clinical research coordinator for a multispecialty clinic which supported research for cardiovascular\, diabetic\, pulmonary\, dermatologic and other conditions as well as having worked in critical care and solid organ transplantation in the ICU at Emory University Hospital. Empowering patients\, families and providers with knowledge for improving health is Betsy’s favorite part of her role and she is honored to work within the bleeding disorders community.\n		\n			\n		 \n\nSpace is sometimes limited and if so\, priority will be given to those members that live within the Shenandoah region. \nThank you to our sponsor CSL Behring.
URL:https://vahemophilia.org/event-program/winchester-educational-dinner/
LOCATION:IJ Canns American Grille\, 3111 Valley Ave\, Winchester\, VA\, 22601\, United States
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